Fetal Care and Treatment Center

Patient and Family Education

We want you to have all the information you and your family need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.

Resources at Seattle Children’s

Condition-Specific Resources

Congenital diaphragmatic hernia (CDH)
- Congenital Diaphragmatic Hernia (CDH) (PDF)
- Congenital Diaphragmatic Hernia (American Pediatric Surgery Association)
Contact our Fetal Care and Treatment Center to learn more about CDH.
Congenital heart disease
See more Heart Center resources for patients and families. Contact our Fetal Care and Treatment Center to learn more about heart conditions.
Craniofacial conditions

See Craniofacial Center resources for patients and families. Contact our Fetal Care and Treatment Center to learn more about craniofacial conditions.
Disorders of the corpus callosum
- National Organization for Disorders of the Corpus Callosum
Down syndrome
- Down Syndrome Community of Puget Sound
- Down Syndrome: Health Issues
- National Down Syndrome Congress
- National Down Syndrome Society
- Resources for Families Who Have a Member With Down Syndrome (Washington State Department of Health)
- Trisomy Online
Gastroschisis
- Gastroschisis and My Baby (PDF)
- Gastroschisis (American Pediatric Surgery Association)
Contact our Fetal Care and Treatment Center to learn more about gastroschisis.
Hydrocephalus
- Hydrocephalus (PDF) (Amharic) (Russian) (Simplfied Chinese) (Spanish)
- Hydrocephalus Association
Contact our Fetal Care and Treatment Center to learn more about hydrocephalus.
Omphalocele
- Omphalocele (American Pediatric Surgery Association)
Contact our Fetal Care and Treatment Center to learn more about omphalocele.
Spina bifida
Contact our Fetal Care and Treatment Center to learn more about spina bifida, including myelomeningocele.
Urologic conditions
- Urology Care Foundation
See more urology resources for patients and families. Contact our Fetal Care and Treatment Center to learn more about urologic conditions.
Selective intrauterine growth restriction (SIUGR)
- Selective Intrauterine Growth Restriction
Contact our Fetal Care and Treatment Center to learn more about SIUGR.
Twin reversed arterial perfusion (TRAP)
- Acardiac Twin and Twin Reversed Arterial Perfusion
Contact our Fetal Care and Treatment Center to learn more about TRAP.
Twin-to-twin transfusion syndrome (TTTS)
- The Twin to Twin Transfusion Syndrome Foundation
Contact our Fetal Care and Treatment Center to learn more about TTTS.

Treatment-Specific Resources

Common Questions After Your Prenatal Visit (PDF) (Spanish)
Echocardiogram
How to Handle a Difficult Prenatal Diagnosis
Medical Genetics (PDF) (Spanish)
Prenatal Genetic Testing (Washington State Department of Health)
Providing Breastmilk: Your Gift to Your Baby (PDF) (Spanish)
SNP Array: Pre-Test Counseling Information (PDF) (Spanish)
Ultrasound: Obstetrical Exam (PDF) (Korean, Russian, Spanish, Vietnamese)
Variant of Uncertain Significance (VUS) (PDF) (Spanish)

Learn more about your baby’s trip to Seattle Children’s if they need Critical Care Transport (Video. 5:10)

General Prenatal Diagnosis and Treatment Resources

Support and classes
- Babysafe Class
- Parent Support Program
- Sibshops
- Unique Rare Chromosome Support Group
- List of support groups at Seattle Children’s
External links
- Fetal Health Foundation
  Information and resources for families who have received a fetal diagnosis.
- Maternal & Infant Care Clinic at UW Medical Center – Montlake
  Services for expecting parents with complicated pregnancies and contact information for the clinic.

Contact Us

Contact the Fetal Care and Treatment Center at 206-987-5629 for an appointment, second opinion or more information.

Providers, see how to refer a patient.

Access Additional Resources

Get resources for patients and families, including information on food, housing, transportation, financial assistance, mental health and more.