Craniofacial Center

Patient and Family Education

We want you to have all the information you and your child need to understand their condition, get the support you need and take part in treatment. We hope these links to resources will be helpful.

Resources at Seattle Children’s

Instructions for taking photos of your child's head shape or cleft lip and palate

If your child is already a patient or you are seeking care with Seattle Children’s Craniofacial Center, our team will need photos of your child’s head shape or their cleft lip and palate.

View our instructions for taking photos of your child’s head shape (PDF) (Spanish PDF)

View our instructions for taking photos of your child’s cleft lip and palate (PDF)

  • JPEG file format is preferred
  • Please e-mail photos as an attachment or send a link to an online or cloud storage service to
  • If you are not already a patient, please have your primary care or craniofacial provider contact us or provide their contact information. If you are live outside the Northwest region of Washington, Alaska, Montana and Idaho learn more about support for out-of-area patients.
  • If you have a referral, you will need to call the Craniofacial Center to schedule your appointment in addition to sending us your photos.
  • You can also upload the photos directly to your Seattle Children's MyChart account.

Travel and Housing Support

We offer support and guidance if you live outside of Alaska, Idaho, Montana, Washington and Wyoming. Learn more.

Condition-Specific Resources

Support and Support Groups

Seattle Children’s Craniofacial Family Chat 
This private Facebook group is a great network of peer support for patients of the Craniofacial Center and their families. The Craniofacial Center’s family liaison manages the group.

Camp Korey 
A camp for youth 7 to 16 years old, including sessions for kids with facial differences.

Sibshops: For Siblings of Children with Special Health and Developmental Needs 
Activities at Seattle Children’s for brothers and sisters of kids with special needs.

Contact Us

Contact the Craniofacial Center at 206-987-2208 for an appointment, a second opinion, a social work consultation or more information.