Reconstructive Pelvic Medicine

Patient and Family Education

We want you to have all the information you and your child need to understand your child’s condition and to take part in their treatment. This page has links to resources that we hope will help you.

Resources at Seattle Children’s

Condition-Specific Resources

Anorectal malformations
Learn more about how Seattle Children’s treats children with imperforate anus and other problems with how a baby’s anus or rectum formed before birth.
- Pull-thru Network
Bladder exstrophy
Learn more about bladder exstrophy (Spanish PDF) at Seattle Children’s.
- Association for the Bladder Exstrophy Community (ABEC)
- Association for the Bladder Exstrophy Community Facebook Page (a Facebook account is needed)
Constipation
- Constipation and Soiling (PDF) (Spanish)
- Constipation: Frequently Asked Questions (PDF) (Spanish)
- Constipation and encopresis video (5:46) (Children’s Hospital Colorado)
Differences in sex development (DSDs)
Contact our Differences in Sex Development Program for resources about conditions that affect genital development and intersex conditions.
- Developmental Differences of the Female Reproductive Organs (PDF)
- Drawings of the Female Reproductive Organs: Developmental (Congenital) Differences (PDF)
- MRKH Syndrome (PDF)
- Male Reproductive System (Kids Health) (Spanish)
Hirschsprung disease
Learn more about Hirschsprung disease at Seattle Children’s.
- Colonic Irrigations for Enterocolitis in Children with Hirschsprung Disease (PDF)
- Hirschsprung Disease Research Collaborative (PDF)
- Hirschsprung's and Motility Disorders Support Network/HMDSN
- What I Need to Know About Hirschsprung Disease (National Institutes of Health)
Neurogenic bladder
- Neurogenic Bladder (American Urological Association)
Neurogenic bowel
- Neurogenic Bowel (PDF) (Spanish)
Rectal prolapse
- Rectal Prolapse (MedlinePlus) (Spanish)

Tests, Treatments and Procedures

See What to Expect for how to prepare your child for tests or procedures they may having during a Reconstructive Pelvic Medicine Program visit.

Bowel Management Week
- Bowel Management Week (PDF) (Spanish)
Tests
- Urodynamics Study (PDF) (Dari) (Russian) (Spanish)
- Lower GI series (PDF) (Spanish)
Treatments and procedures
- Antegrade Continence Enema (ACE) Surgery (PDF) (Spanish) (Dari) (Farsi)
- Bowel Management Week (PDF) (Spanish)
- Mitrofanoff Channel (PDF) (Dari) (Spanish)
- Mitrofanoff Catheterization Demonstration Video (2:43)
- Ostomies (PDF) (Spanish)
At-home care
- Antegrade Continence Enema (ACE) Irrigation (PDF) (Spanish)
- Bowel Management Program: Frequently Asked Questions about Enemas (PDF) (Spanish)
- Clean Intermittent Catheterization (PDF) (Dari) (Russian) (Spanish)
- How to Use Vaginal Dilators (PDF)

If Your Child Needs Surgery

If your child is having surgery at Seattle Children’s, see Surgery – What to Expect for how to help them get ready. That webpage also links to descriptions of procedures and tips for going home after your child’s surgery.

General Reconstructive Pelvic Medicine Resources

Support
- RPM Family Facebook Page (a Facebook account is needed)
- Camp Korey
- How to Handle a Difficult Prenatal Diagnosis
External links

Contact Us

To make an appointment, you can call us directly or ask your child’s primary care provider to refer you. You do not need a referral, but we encourage you to coordinate with your primary care provider when coming to Seattle Children’s.

Providers, see how to refer a patient.