Patient and Family Education
We want you to have all the information you and your child need to understand your child’s condition and to take part in their treatment. This page has links to resources that we hope will help you.
Resources at Seattle Children’s
Condition-Specific Resources
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Learn more about how Seattle Children’s treats children with imperforate anus and other problems with how a baby’s anus or rectum formed before birth.
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Learn more about bladder exstrophy (Spanish PDF) at Seattle Children’s.
- Association for the Bladder Exstrophy Community (ABEC)
- Association for the Bladder Exstrophy Community Facebook Page (a Facebook account is needed)
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- Constipation and Soiling (PDF) (Spanish)
- Constipation: Frequently Asked Questions (PDF) (Spanish)
- Constipation and encopresis video (5:46) (Children’s Hospital Colorado)
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Contact our Differences in Sex Development Program for resources about conditions that affect genital development and intersex conditions.
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Learn more about Hirschsprung disease at Seattle Children’s.
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- Neurogenic Bladder (American Urological Association)
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- Neurogenic Bowel (PDF) (Spanish)
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- Rectal Prolapse (MedlinePlus) (Spanish)
Tests, Treatments and Procedures
See What to Expect for how to prepare your child for tests or procedures they may having during a Reconstructive Pelvic Medicine Program visit.
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- Bowel Management Week (PDF) (Spanish)
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- Urodynamics Study (PDF) (Russian) (Spanish)
- Lower GI series (PDF) (Spanish)
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- Antegrade Continence Enema (ACE) Surgery (PDF) (Spanish) (Dari) (Farsi)
- Bowel Management Week (PDF) (Spanish)
- Mitrofanoff Channel (PDF) (Dari) (Spanish)
- Mitrofanoff Catheterization Demonstration Video (2:43)
- Ostomies (PDF) (Spanish)
If Your Child Needs Surgery
If your child is having surgery at Seattle Children’s, see Surgery – What to Expect for how to help them get ready. That webpage also links to descriptions of procedures and tips for going home after your child’s surgery.
General Reconstructive Pelvic Medicine Resources
Contact Us
Contact us at 206-987-1240 for an appointment, second opinion or more information.
To make an appointment, you can call us directly or ask your child’s primary care provider to refer you. You do not need a referral, but we encourage you to coordinate with your primary care provider when coming to Seattle Children’s.
Providers, see how to refer a patient.
