Patient and Family Resources
We want you to have all the information you and your child need to understand your child’s condition and to take part in their treatment. This page has links to resources that we hope will help you.
Resources at Seattle Children’s
- Association for the Bladder Exstrophy Community (ABEC)
- Association for the Bladder Exstrophy Community Facebook Page (a Facebook account is needed)
Contact our Differences in Sex Development Program for resources about conditions that affect genital development and intersex conditions.
Learn more about Hirschsprung disease at Seattle Children’s.
- Neurogenic Bladder (American Urological Association)
Tests, Treatments and Procedures
See What to Expect for how to prepare your child for tests or procedures they may having during a Reconstructive Pelvic Medicine Program visit.
If Your Child Needs Surgery
If your child is having surgery at Seattle Children’s, see Surgery – What to Expect for how to help them get ready. That webpage also links to descriptions of procedures and tips for going home after your child’s surgery.
Contact us at 206-987-1240 for an appointment, second opinion or more information.
To make an appointment, you can call us directly or ask your child’s primary care provider to refer you. You do not need a referral, but we encourage you to coordinate with your primary care provider when coming to Seattle Children’s.
Providers, see how to refer a patient.