Patient and Family Resources
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children's
- What to expect at the Differences in Sex Development (DSD) Program
- How to prepare for your visit
- Transportation and places to stay
- Hospital services
- Food and dining
- Paying for care
- Social work
- Developmental Differences of the Female Reproductive Organs (PDF)
- Drawings of the Female Reproductive Organs: Developmental (Congenital) Differences (PDF)
Contact our DSD Program to learn more about congenital developmental differences of the female reproductive organs.
- Turner Syndrome
- Turner Syndrome Society
- Clinical Practice Guidelines for the Care of Girls and Women With Turner Syndrome (Patient/Family Version) (Turner Syndrome Society)
Contact our DSD Program to learn more about Turner syndrome.
- Acute Pain: Prevent and relieve pain from a surgery or medical procedure (PDF) (Amharic) (Arabic) (Chinese) (Russian) (Somali) (Spanish) (Vietnamese)
- Care After Gynecological Surgery (PDF) (Spanish)
- Care Before a Surgery or Procedure (PDF) (Arabic) (Dari) (French) (Japanese) (Pashto) (Russian) (Simplified Chinese) (Spanish) (Ukrainian) (Vietnamese)
- Hibiclens Bathing and Antibiotic Ointment Instructions (PDF) (Arabic)(French) (Russian) (Spanish) (Vietnamese)
- Laparoscopic and Robotic Surgery (Urology) (PDF) (Spanish)
- Laparoscopy (Gynecology) (PDF)
- Making an Informed Decision for Your Child (PDF) (Spanish)
- Seattle: Before-Procedure Checklist (PDF) (Chinese) (Russian) (Spanish) (Vietnamese)
- Accord Alliance
Information and resources for families and healthcare providers about DSDs.
- American Association of Sexuality Educators, Counselors and Therapists
Has a referral directory for families seeking a sexuality educator, counselor or therapist.
- Association for X and Y Variations (AXYS)
Information and support for people with 1 or more extra X or Y chromosomes and their families.
- DSD Handbook for Parents
Help for understanding your child’s DSD, what to expect and how to support your child and for exploring your own feelings about your child’s differences.
Information and peer support for parents of children with DSDs and for teens with DSDs.
- Female Reproductive System (KidsHealth)
Details about the reproductive body parts that girls typically have and how they work.
- Hormone Health Network
A website for learning about the role of hormones in health and well-being.
- How Sex Development Works (The Hospital for Sick Children)
Explains the typical process for becoming male or female and how development happens in people with hypospadias or AIS and 5-alpha-reductase deficiency.
Group that promotes laws and policies to protect intersex youth.
- Male Reproductive System (KidsHealth)
Details about the reproductive body parts that boys typically have and how they work.
- The MAGIC Foundation
Information and support for parents of children with conditions that affect growth, including Turner syndrome.
- Accord Alliance