Patient and Family Resources
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
- Contact our Gastroenterology Program to learn more about anorectal malformations.
- Pull-thru Network
- Contact our Fetal Care and Treatment Center to learn more about congenital diaphragmatic hernia.
- Congenital diaphragmatic hernia: CHERUBS
- Contact our Gastroenterology Program to learn more about tracheoesophageal fistula (TEF) and esophageal atresia (EA)
- An EA/TEF Story Inside and Out, a book by a mom whose child has esophageal atresia
- EA/TEF (esophageal atresia and tracheoesophageal fistula) Family Support Connection
- EA/TEF Family Support on Facebook
For conditions including irritable bowel syndrome (IBD), Crohn’s disease and ulcerative colitis, see:
- Contact our Gastroenterology Program to learn more about GER.
- GI Kids
- Contact our Gastroenterology Program to learn about gastroschisis.
- Your Gastroschisis Journey (Video 28:45)
- Read about how we care for children with Jeune syndrome at Seattle Children’s
- Little People of America, Inc.
- Vascular Birthmarks Foundation
Your Child’s Surgery
- Read about what to expect during a visit to the surgery clinic or when having surgery at Seattle Children’s.
- Get tips on preparing your child for surgery.
Tests and Procedures
- Kidney Biopsy and Your Child (PDF)
- Ultrasound (PDF)
- Laparoscopic and Robotic Surgery (PDF) (Spanish)
- Port-a-Cath, a tube for giving medicine into a vein or drawing blood (Video 9:08)
- United Ostomy Associations of America – For people who have had a surgical procedure to change how urine or stool leaves their body. Procedures include colostomy, ileostomy and urostomy.
General Surgery Resources
- Parents Speak Up about Pain (Video 8:14)
- Surgery Playlist on YouTube
Call our General and Thoracic Surgery Department at 206-987-2794 for an appointment, a second opinion or more information.
To make an appointment, you can call us directly or get a referral from your child’s primary care provider. We encourage you to coordinate with your pediatrician or family doctor when coming to Seattle Children’s.
Providers, see how to refer a patient.