Neurodevelopmental Program
Patient and Family Resources
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
- What to expect at the Neurodevelopmental Program
- How to prepare for your visit
- Transportation and places to stay
- Hospital services
- Paying for care
- Social work
Condition-Specific Resources
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- Bladder Exstrophy (PDF) (Dari) (Spanish)
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- Daytime Wetting (PDF) (Spanish)
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- Latex Allergy (PDF) (Spanish)
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- Plagiocephaly (Flat Head Syndrome) (Video 5:09). Matt Speltz from Seattle Children’s discusses the possible association between plagiocephaly and developmental delay.
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- Urinary Reflux (PDF) (Spanish)
Treatment-Specific Resources
- ACE Irrigation (PDF)
- Clean Intermittent Catheterization (PDF) (Spanish)
- Mitrofanoff Channel (PDF) (Dari) (Spanish)
- Videofluoroscopic Swallowing Study (VFSS) (PDF)
- Voiding Cysto Urethrogram (VCUG) (PDF) (Spanish)
- CT Scan (PDF) (Spanish)
- Magnetic Resonance Imaging (MRI) (PDF) (Spanish)
- Ultrasound (PDF) (Spanish)
- X-ray (PDF) (Spanish)
Specifically for Teens and Young Adults
Classes and Support
- Children's Sibshops
- The Fathers Network
- OASIS @ MAAP (autism and Asperger syndrome)
- Parent to Parent (P2P) Support Programs of Washington State (The Arc)
- SOFT: Support Organization for Families with Trisomy 18, 13 and Related Disorders
- Trisomy Online
Other Neurodevelopmental Resources
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- Bedwetting Store
- General Pediatric Incontinence (Urology Care Foundation)
- Potty MD
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- American Association on Intellectual and Developmental Disabilities (AAIDD)
- Birth to Three Centers: King and Pierce County Community Resources
- Books on Parenting Children with Special Needs or Disabilities (Children’s Disabilities Information)
- CanChild Centre for Childhood Disability Research (McMaster University)
- Center on Human Development and Disability, University of Washington
- Developmental Disabilities Administration (Washington State Department of Social and Health Services)
- Disability Resources (U.S. Department of Labor)
- Disabilities, Opportunities, Internetworking, and Technology (DO-IT), University of Washington
- Intellectual Disability Fact Sheet (CDC) (PDF)
- Learning Disabilities Association of Washington
- National Center for Learning Disabilities
- Washington State Developmental Disabilities Council
Support the Neurodevelopmental Program
If you are interested in supporting the Neurodevelopmental Program, please contact Dr. William Walker.
Disabilities and Special Healthcare Needs (Publications From Washington State Department of Health)
For additional resources, visit Disabilities and Special Healthcare Needs Publications for links to online publications on a variety of health topics.
