Neurodevelopmental Program

Patient and Family Education

We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.

Resources at Seattle Children’s

Condition-Specific Resources

Autism
- Autism Spectrum Disorder
- Seattle Children’s Autism Center Patient and Family Resources
Bladder exstrophy
- Bladder Exstrophy (PDF) (Dari) (Spanish)
Cerebral Palsy
- Contact our Neurosciences Center to have your child evaluated for cerebral palsy and spasticity.
- Contact our Rehabilitation Medicine Program to learn how we treat children and adolescents with cerebral palsy and spasticity.
- See Cerebral Palsy Patient and Family Resources from Seattle Children’s.
Chiari malformation
Constipation and soiling
- Constipation and Soiling (Encopresis) (PDF) (Spanish)
- Diet and High-Fiber Foods (PDF)
Daytime wetting
- Daytime Wetting (PDF) (Spanish)
Delayed speech or language development
- Delayed Speech or Language Development (KidsHealth) (Spanish)
Hydrocephalus
- Hydrocephalus
Latex allergy
- Latex Allergy: Who's at Risk and How to Lower Risk of a Reaction (PDF) (Russian) (Spanish)
Neurogenic bowel
- Neurogenic Bowel: Problem-Solving Tips (PDF) (Spanish)
Plagiocephaly (flat head syndrome) (video)
- Plagiocephaly (Flat Head Syndrome) (Video 5:09). Matt Speltz from Seattle Children’s discusses the possible association between plagiocephaly and developmental delay.
Spina bifida
- Folic Acid Information (Spina Bifida Association)
- Spina Bifida (PDF) (Amharic) (Spanish)
- Spina Bifida Association
- Spina Bifida Advocates of Washington State
Tethered spinal cord
- Tethered Spinal Cord (PDF) (Spanish)
- Tethered Cord Fact Sheet (SBA)
Tourette syndrome
- Tourette Syndrome (KidsHealth) (Spanish)
Urinary reflux
- Urinary Reflux (PDF) (Dari) (Spanish)
Urinary tract infections
- Urinary Tract Infections (PDF) (Russian) (Spanish)

Treatment-Specific Resources

ACE Irrigation (PDF)
Clean Intermittent Catheterization (PDF) (Dari) (Russian) (Somali) (Spanish)
Mitrofanoff Channel (PDF) (Dari) (Spanish)
Videofluoroscopic Swallowing Study (VFSS) (PDF) (Russian) (Spanish)
Voiding Cysto Urethrogram (VCUG) (PDF) (Dari) (Russian) (Spanish)
CT Scan (PDF) (Spanish)
Magnetic Resonance Imaging (MRI) (PDF) (Spanish) (Russian)
Ultrasound (PDF) (Spanish)
X-ray (PDF) (Spanish)

Specifically for Teens and Young Adults

Classes and Support

Other Neurodevelopmental Resources

ADHD/ADD
- ADHD/ADD (Seattle Children's)
- ADDitude Magazine: Living Well with ADD and Learning Disabilities
- Attention Deficit Disorder Association
- Children and Adults with Attention Deficit/Hyperactivity Disorder (CHADD)
- National Resource Center on ADHD
Advocacy
Assistive technology
- Washington Assistive Technology Act Program (WATAP)
Birth control
- Birth Control (Center for Young Women's Health)
- Birth Control (Planned Parenthood)
- Birth Control (Public Health (Seattle and King County)
Down syndrome
Driving/traveling
- Car Seat Options for Children with Behavior Challenges (Spanish)
- Disabled Parking (Washington State Department of Licensing)
- Travelers With Disabilities and Medical Conditions (Transportation Security Administration)
Early intervention
- Early Support for Infants and Toddlers: Developmental Disabilities and Early Childhood Supports Division (King County)
Emergency preparedness
- Emergency Information Form for Children With Special Needs (American College of Emergency Physicians)
Fraudulent medical information
- Quackwatch
Incontinence/potty training
- Bedwetting Store
- General Pediatric Incontinence (Urology Care Foundation)
- Potty MD
Learning disabilities/developmental disabilities
- American Association on Intellectual and Developmental Disabilities (AAIDD)
- Birth to Three Centers: King and Pierce County Community Resources
- CanChild Centre for Childhood Disability Research (McMaster University)
- Center on Human Development and Disability, University of Washington
- Developmental Disabilities Administration (Washington State Department of Social and Health Services)
- Disability Resources (U.S. Department of Labor)
- Disabilities, Opportunities, Internetworking, and Technology (DO-IT), University of Washington
- National Center for Learning Disabilities
- Requesting Accommodations for Medical Needs (PDF) (Spanish)
- Washington State Developmental Disabilities Council
Mental health
Recreation/sports
- BlazeSports
- Camp Casey (North Central Kiwanis)
- Little Bit Therapeutic Riding Center
- Outdoors for All Foundation
- Seattle Adaptive Sports
- U.S. Paralympic Team
Rehabilitation medicine
- Seattle Children’s Rehabilitation Medicine
- University of Washington Rehabilitation Medicine
Schools/homeschooling
- Special Education Child Find (Seattle Public Schools)
- Washington Homeschool Organization
- Washington School Districts (Superintendent of Public Instruction)
Sleep
- Sleep Diary (Sleep Log) (PDF)
- National Sleep Foundation
Social Security information
- Social Security Information for Children with Disabilities

Support the Neurodevelopmental Program

If you are interested in supporting the Neurodevelopmental Program, please contact Julia Mitzel.

Disabilities and Special Healthcare Needs (Publications From Washington State Department of Health)

For additional resources, visit Disabilities and Special Healthcare Needs Publications for links to online publications on a variety of health topics.