Tests and Procedures

Recommended Reading

Airway clearance techniques

Cystic fibrosis

Support Groups and Classes

  • Sibshops 
    Workshops for siblings of kids with developmental needs and/or special health concerns, including cystic fibrosis.

Not affiliated with Seattle Children’s

  • Kindering Seattle 
    Network assisting fathers as they become more competent and compassionate caregivers for their children with special needs.
  • Tips for CF Parents 
    Educational website providing practical information and offering teleclasses for parents of children with cystic fibrosis.
  • Seattle-Area CF Parent Group  

Useful Links



The following books are available for checkout at our Family Resource Center, or through online booksellers.

  • An Introduction to Cystic Fibrosis: For Patients and Families (2013). James Cunningham, MD, and CF Foundation.
    Guide for patients and families. Provides definition of CF and how it affects the various parts of the body and discusses living with CF. Sixth edition. Available as a PDF.
  • Cystic Fibrosis: A Guide for Patient and Family (2012). David Orenstein.
    Offers practical information on day-to-day concerns, such as school, travel, exercise, nutrition, medications, physiological effects, long-term issues and prospects of a cure. Provides answers to frequently asked questions by patients and families. Fourth edition.
  • Parenting Children With Health Issues (2007). Foster Cline, MD, and Lisa Greene.
    Principles of parenting a child with special health issues. Also covers growth and development, siblings, emotional health and mental health topics.

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