Conditions

Diabetes

  • Schedule an appointment
    • Talk with your child’s primary care provider for a referral.
    • If you have a referral, call 206-987-2640 for an appointment.
    • How to schedule.

    If this is a medical emergency, call 911.

  • Find a doctor
  • Locations
  • Refer a patient

    For newly diagnosed diabetes

    • If your patient is newly diagnosed with diabetes and is under 5 years old or has complex medical or social needs, they will require hospital admission for our two- or three-day inpatient protocol. Please call Seattle Children’s Communication Center: 206-987-8899 or, toll free, 866-987-8899 before sending your patient to Seattle Children’s. This helps facilitate their arrival in the Emergency Department.
    • If your newly diagnosed patient is at least 5 years old and otherwise healthy, they may be a candidate for outpatient education. Please page the endocrinologist on-call at 206-987-7777. You and the endocrinologist will have a phone consultation to develop a plan. Depending on time of day, we will likely see your patient at 7:30 a.m. the next day to start education.
  • For other endocrinology referrals
    • If you are a provider, fax a New Appointment Request Form (NARF) (PDF, DOC) to 206-985-3121 or 866-985-3121 (toll free).
    • Instead of fax, you can use EpicCare Link, an online way to submit referrals and track referral status. Getting started with EpicCare Link.
    • Pre-referral work-up is not required for most conditions. Please fax growth charts and any lab results related to the referral question, along with the NARF.
    • If imaging studies (CT, MRI, X-rays) have been done, please upload to PowerShare as well as faxing the report.
    • View our complete information on Endocrinology and Diabetes referral information.

What is diabetes?

When your child eats, their body turns food into a type of sugar called glucose (glue-kohs). In diabetes (dye-uh-BEE-tees), the sugar level in your child’s blood gets too high.

This happens because of problems with the hormone called insulin. The job of insulin is to move sugar from the blood into the body’s cells so it can be used for energy. Insulin helps keep blood sugar levels normal. It also helps the body use fat and protein. Insulin is made in the pancreas (PAN–cree-us).

There is no cure for diabetes. But your child can stay healthy if they work with their healthcare team, take insulin as needed, eat balanced meals and exercise.

There are 2 common types of diabetes. Both make blood sugar levels higher than normal, but they do so in different ways.

  • Type 1 diabetes

    In type 1 diabetes, blood sugar levels rise because the body stops making enough insulin. Sometimes this happens because the pancreas is damaged. Over time the cells that make insulin are destroyed. Type 1 diabetes is an autoimmune (awe-toe-ih-mewn) process. This means the body destroys its own cells — the cells that make insulin. Type 1 diabetes is most often diagnosed in children and young adults. People with type 1 diabetes must take insulin for life.

  • Type 2 diabetes

    In type 2 diabetes, the body makes insulin but does not respond to it properly. Glucose is less able to enter the cells and supply energy. This makes blood sugar levels rise. Type 2 diabetes is more common in kids older than 10 and in adults. Maintaining a healthy weight, nutrition and physical activity are key to treating type 2 diabetes. People with type 2 diabetes may or may not need to take insulin.

    Our Type 2 Diabetes Clinic brings together experts in different specialties to help your child make lifestyle changes and manage their diabetes with the right medications. We work as a team — and with you — to monitor your child’s health and provide education and support to lead a high-quality life with type 2 diabetes. 

Diabetes at Seattle Children’s

We care for your child while helping you and your child learn how best to manage their condition. Each year we treat thousands of children and teens with diabetes.

If you would like a referral to our Endocrinology and Diabetes Program, talk to your primary care provider. If you have any questions or already have a referral, please contact us at 206-987-2640 for an appointment. Providers, see how to refer a patient.

  • The experts you need are here
    • Children and teens with Type 1 or Type 2 diabetes need providers with varied skills and knowledge. As needed, your child will get care from doctors (endocrinologists), advanced practice providers, nurses, certified diabetes educators, athletic trainers, dietitians and social workers. Learn more about the diabetes team visit (PDF).
    • Our Type 1 and Type 2 diabetes patients will receive care tailored to them. Our diabetes specialists work together to provide medical care, education, training and support to help our patients establish and maintain healthy habits and behaviors to live the most healthy life possible.
    • We base our treatments on research about what works best. Our team follows standards set by the American Diabetes Association (ADA) and by the International Society of Pediatric and Adolescent Diabetes (ISPAD).
    • We work hard to prevent disease, not just treat it. Our Insulin Resistance team helps kids and their families make lifestyle changes to prevent type 2 diabetes.
    • Our Emergency Department offers round-the-clock access to Seattle Children’s experts and the full facilities of our hospital.

     

  • We are active in research to advance pediatric care

    Dr. Marguerite T. Parisi has been involved in many studies of radioactive iodine (radioiodine, or I-131) therapy, used for overactive thyroid.

    Research on fine-needle aspiration biopsies for thyroid conditions shows our results for children and adolescents are as accurate as the results of doctors doing these biopsies for adults.

    A study at Seattle Children’s showed our patients are ready to leave the hospital sooner after surgery to remove the thyroid. This is because of the ways we carefully manage low levels of calcium in the blood (hypocalcemia) — which can happen when surgery disturbs blood flow to the parathyroid glands.

  • Support for your whole family
    • At Seattle Children’s, your family has a full team behind you. We work together and with you to meet your child’s medical needs and improve their quality of life.
    • Our team helps you understand treatment options and handle the challenges of your child’s condition. Read how we support your child’s and family’s emotional and psychological well-being and link you to community resources.
    • As they get older, your child plays a larger role in their care. With UW Medicine, we created the Adolescent and Young Adult Diabetes Transition Clinic. The team helps your teen take charge of managing their diabetes and make the change to adult care.
    • We work with many children and families from around the Northwest and beyond. We can help with financial counseling, schooling, housing, transportation, interpreter services and spiritual care. Learn about our services for patients and families.
  • Research to advance care

    Seattle Children’s doctor-scientists work to improve treatment and quality of life for children and teens with diabetes. What we learn through research affects the care we give all children.

    • Our research team may ask your family if you want to take part in research studies. You always have a choice. Some studies collect information. Others test new medicines or treatments in people to make sure they are safe and see how well they work. Learn about taking part in research at Seattle Children’s.
    • In current studies, we are collecting information about complications of diabetes, quality of life, quality of care and other factors. The largest study is called SEARCH for Diabetes in Youth. This national multicenter study aims to understand more about diabetes among children and young adults in the United States. More than 35,000 youth with diabetes have taken part so far. SEARCH has helped determine the extent of diabetes in the community and its impact on different groups of people. This data has helped shape public health policies for diabetes prevention and treatment.
    • Learn more about current diabetes research studies at Seattle Children’s.
    • In work that holds promise for curing type 1 diabetes, scientists aim to reprogram T cells so they protect the pancreas instead of attacking cells that make insulin. This research uses gene-editing techniques pioneered at Seattle Children’s. Read about new immunotherapies under way for type 1 diabetes.

     

Symptoms of Diabetes

With both types of diabetes, you may not know that anything is wrong at first. The symptoms may take a long time to show up. Type 1 diabetes develops when nearly all the cells that make insulin are destroyed. A child with either type of diabetes may:

  • Pee (urinate) a lot
  • Be very thirsty
  • Feel tired
  • Lose weight
  • Feel very hungry
  • Have trouble seeing
  • Possibly start wetting the bed

Some kids with type 2 diabetes show changes in their skin. Their skin may be darker or have dry patches on their neck, under their arms or in the groin area. This is called acanthosis nigricans (ah-can-THO-sis nig-reh-CANZ).

Diagnosing Diabetes

If doctors think your child may have diabetes, they will test your child’s blood sugar levels. They may also check your child’s blood or pee (urine) for ketones. These are chemicals that form if your child’s body breaks down fat for energy.

Even if your child does not have symptoms, doctors may check their blood sugar if they have risk factors such as being very overweight.

Treating Diabetes

The goal of treatment is to keep blood sugars at a healthy level. Insulin is part of treatment for all kids with type 1 diabetes and for some with type 2 diabetes. Following a healthy diet and getting exercise are important with either type.

We will help you understand the diagnosis and how to give your child or teen the best possible diabetes care at home. When they are first diagnosed with type 1 diabetes, some children stay in the hospital for 2 or 3 days to get care and learn about managing the condition. If your child is at least 5 years old and otherwise healthy, you and your child may learn about type 1 diabetes in a classroom setting. See what to expect and how to prepare for the Living With Diabetes class (PDF).

For a new onset Type 2 Diabetes diagnosis, your child will learn about type 2 in a diabetes outpatient class to educate them about their disease and get them started on the right track. Ongoing and follow-up care will take place in our dedicated Type 2 Diabetes Clinic.

  • Insulin

    Children and teens with type 1 diabetes need insulin to replace the insulin their body does not make. Kids with type 2 diabetes may need insulin or medicine that helps insulin work better in their bodies. Kids can get insulin from shots or an insulin pump. There is no pill form of insulin.

    Your doctor will tell you what kind of insulin or medicine your child needs. A nurse will show you or your child how to give the shots or use an insulin pump.

  • Testing blood sugar levels

    Your care team will explain how to test your child’s blood sugar levels and how often to do it. Most people test a drop of blood from the tip of their finger. A small handheld machine called a glucose meter will tell how much glucose is in your child’s blood. The machines are also called glucose monitors.

    Keep good records of your child’s blood sugar levels and bring them to check-ups. Your healthcare provider will tell you the blood sugar levels to aim for.

  • Testing ketones

    Ketones (key-tones) are chemicals that show up in pee (urine), blood or breath when the body breaks down fat for energy. Ketones can build up in your child’s body and make them sick. The body burns fat when there is not enough insulin to allow sugar to be burned for energy.

    Your healthcare team will tell you how to test your child’s ketones and how often to test. Testing tells us if your child is taking enough insulin to turn off ketone production.

    Urine ketone testing is very important. A method for testing ketones must be kept in the home (and taken on trips) at all times.

    Ketones are measured as being negative (our target), small, moderate or large.

  • Healthy diet

    A dietitian (die-uh-tish-uhn) will help work out a meal plan for your child. Your healthcare team will tell you how strict your child’s diet needs to be.

    When your child eats, their body turns food into a type of sugar called glucose (glue-kohs). Blood glucose (or blood sugar) levels go up. Your child can prevent a sharp, unhealthy rise in blood sugar at mealtime by taking insulin if needed before meals and by eating healthy foods. If your child’s blood sugar drops too low, they may need some quick sugar in the form of juice or candy.

  • Exercise

    Being active is good for a child with diabetes. It helps your child’s cells take in glucose. This lowers the blood sugar levels in their body. Talk to your care team about an exercise plan that will be fun for your child, such as walking, soccer or swimming. Check with your doctor before your child makes a big change in exercise habits or starts a new sport.

    When your child exercises or goes on an outing, first check their blood sugar. If your child takes insulin, bring a bag packed with:

    • A water bottle
    • Glucose tablets, hard candy or juice for emergency low blood sugar
    • A healthy snack such as crackers and cheese or a sandwich
    • Supplies needed to check blood sugar
  • Regular follow-up visits

    Regular checkups with the healthcare team will help keep your child healthy and find any problems early. High blood sugar levels can damage your child’s eyesight, kidneys, heart and nerves. Diabetes increases the chance of high blood pressure or high levels of fats in your child’s blood. We keep a careful watch to prevent problems.

  • Emotional and psychological support for your family

    As we treat your child’s diabetes, our team also cares for your family’s emotional, psychological and social well-being. Our social workers, child life specialist and pediatric psychologist work as a team to help your child and family adjust to and live well with diabetes. Learn how.

  • Transition to adult care

    As your child gets older, we help them get ready to manage diabetes without relying on their parents. Our step-by-step plan helps teens make the change to an adult healthcare provider at their own pace.

    We have teamed up with UW Medicine to create the Adolescent and Young Adult Diabetes Transition Clinic. Teens get help dealing with insurance, making appointments, managing supplies and finding support at school or in the community. The team includes doctors (both adult and pediatric endocrinologists), a psychologist, a nurse educator, a dietitian and a social worker. Patients also have the option to take part in research studies.

Contact Us

If you would like a referral to our Endocrinology and Diabetes Program, talk to your primary care provider. If you have any questions or already have a referral, please contact us at 206-987-2640 for an appointment.

Providers, see how to refer a patient.

  • Schedule an appointment
    • Talk with your child’s primary care provider for a referral.
    • If you have a referral, call 206-987-2640 for an appointment.
    • How to schedule.

    If this is a medical emergency, call 911.

  • Find a doctor
  • Locations
  • Refer a patient

    For newly diagnosed diabetes

    • If your patient is newly diagnosed with diabetes and is under 5 years old or has complex medical or social needs, they will require hospital admission for our two- or three-day inpatient protocol. Please call Seattle Children’s Communication Center: 206-987-8899 or, toll free, 866-987-8899 before sending your patient to Seattle Children’s. This helps facilitate their arrival in the Emergency Department.
    • If your newly diagnosed patient is at least 5 years old and otherwise healthy, they may be a candidate for outpatient education. Please page the endocrinologist on-call at 206-987-7777. You and the endocrinologist will have a phone consultation to develop a plan. Depending on time of day, we will likely see your patient at 7:30 a.m. the next day to start education.
  • For other endocrinology referrals
    • If you are a provider, fax a New Appointment Request Form (NARF) (PDF, DOC) to 206-985-3121 or 866-985-3121 (toll free).
    • Instead of fax, you can use EpicCare Link, an online way to submit referrals and track referral status. Getting started with EpicCare Link.
    • Pre-referral work-up is not required for most conditions. Please fax growth charts and any lab results related to the referral question, along with the NARF.
    • If imaging studies (CT, MRI, X-rays) have been done, please upload to PowerShare as well as faxing the report.
    • View our complete information on Endocrinology and Diabetes referral information.