Patient and Family Resources
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
- Rheumatology: What to expect and how to prepare
- Infusion Services: What to expect and how to prepare (PDF)
- How to prepare for your visit
- Transportation and lodging
- Hospital services
- Paying for care
Condition-Specific Resources
Links marked “(PRINTO)” are maintained by the Pediatric Rheumatology International Trials Organization. These materials are available in many languages.
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- Arthritis Foundation
- Juvenile Idiopathic Arthritis (PRINTO)
- Juvenile Spondyloarthropathies (PRINTO)
- Lyme Arthritis (PRINTO)
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- Behçet's Disease (PRINTO)
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In this video, CRMO Program director Dr. Yongdong (Dan) Zhao presents at the November 2022 CRMO Families Conference. Topics include research updates and program information.
In this video, qualitative research expert Susan Thornhill presents at the November 2022 CRMO Families Conference. Topics include the value of community connection and family sharing.
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) (PDF) (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Roadmap for Your Child’s Treatment (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Through the Lens of Patients and Families (video 1:12)
- Seattle Children’s CRMO Family Conference (video 1:24)
- CRMO Family Group on Facebook (Facebook account needed)
- Kaila Komfort, a nonprofit organization that sends a care package to people recently diagnosed with CRMO
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- Juvenile Dermatomyositis (PRINTO)
- Juvenile Idiopathic Arthritis (PRINTO)
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- Hypermobility - Juvenile (American College of Rheumatology) (Spanish)
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- Kawasaki disease
- Kawasaki Disease (PDF) (Spanish)
- Kawasaki Disease (PRINTO)
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- Pain Syndromes (PRINTO)
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- Scleroderma (PRINTO)
- Scleroderma Foundation
Treatment-Specific Resources
- Infusion Services (PDF)
General Rheumatology Resources
- Sun Safety for Your Child (PDF) (Simplified Chinese) (Spanish) (Vietnamese)
Contact Us
For more information, contact Rheumatology at 206-987-2057. If you would like an appointment, ask your child’s primary care provider for a referral.
Providers, see how to refer a patient.
Fax (for providers): 206-985-3396
