Patient and Family Resources
We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.
Resources at Seattle Children’s
- Rheumatology: What to expect and how to prepare
- Infusion Services: What to expect and how to prepare (PDF)
- How to prepare for your visit
- Transportation and lodging
- Hospital services
- Paying for care
Condition-Specific Resources
Links marked “(PRINTO)” are maintained by the Pediatric Rheumatology International Trials Organization. These materials are available in many languages.
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- Arthritis Foundation
- Juvenile Idiopathic Arthritis (PRINTO)
- Juvenile Spondyloarthropathies (PRINTO)
- Lyme Arthritis (PRINTO)
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- Behçet's Disease (PRINTO)
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Dr. Dan Zhao from Seattle Children's Rheumatology hosts the CRMO Family Day Educational Event 2020. This event was held for families of children with Chronic recurrent multifocal osteomyelitis (CRMO), to provide an update on the current state of research and funding.
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) (PDF) (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Roadmap for Your Child’s Treatment (Spanish)
- CRMO Family Group on Facebook (Facebook account needed)
- Kaila Komfort, a nonprofit organization that sends a care package to people recently diagnosed with CRMO
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- Juvenile Dermatomyositis (PRINTO)
- Juvenile Idiopathic Arthritis (PRINTO)
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- Hypermobility - Juvenile (American College of Rheumatology) (Spanish)
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- Kawasaki disease
- Kawasaki Disease (PDF) (Spanish)
- Kawasaki Disease (PRINTO)
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- Pain Syndromes (PRINTO)
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- Scleroderma (PRINTO)
- Scleroderma Foundation
Treatment-Specific Resources
- Infusion Services (PDF)
General Rheumatology Resources
- Sun Safety for Your Child (PDF) (Simplified Chinese) (Spanish) (Vietnamese)
Contact Us
For more information, contact Rheumatology at 206-987-2057. If you would like an appointment, ask your child’s primary care provider for a referral.
Providers, see how to refer a patient.
Fax (for providers): 206-985-3396
