Rheumatology

Patient and Family Education

We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.

Resources at Seattle Children’s

Rheumatology: What to expect and how to prepare
Infusion Services: What to expect and how to prepare (PDF)
How to prepare for your visit
Transportation and lodging
Hospital services
Paying for care

Condition-Specific Resources

Links marked “(PRINTO)” are maintained by the Pediatric Rheumatology International Trials Organization. These materials are available in many languages.

Arthritis
- Arthritis Foundation
- Juvenile Idiopathic Arthritis (PRINTO)
- Juvenile Spondyloarthropathies (PRINTO)
- Lyme Arthritis (PRINTO)
Behçet's disease
- Behçet's Disease (PRINTO)
Chronic recurrent multifocal osteomyelitis (CRMO)
Watch this video from the 2024 Chronic Recurrent Multifocal Osteomyelitis (CRMO) Family Conference hosted by Seattle Children's, with speakers Drs. Tom Jinguji, Jenna Thomason and Yongdong (Dan) Zhao.
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) (PDF) (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Roadmap for Your Child’s Treatment (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Through the Lens of Patients and Families (video 1:12)
- Seattle Children’s CRMO Family Conference (video 1:24)
- CRMO Family Group on Facebook (Facebook account needed)
- Kaila Komfort, a nonprofit organization that sends a care package to people recently diagnosed with CRMO
Dermatomyositis
- Juvenile Dermatomyositis (PRINTO)
- Juvenile Idiopathic Arthritis (PRINTO)
Hypermobility joint syndrome
- Hypermobility – Juvenile (American College of Rheumatology) (Spanish)
Kawasaki disease
- Kawasaki disease
- Kawasaki Disease (PDF) (Spanish)
- Kawasaki Disease (PRINTO)
Lupus
- Systemic Lupus Erythematosus (PRINTO)
- Pacific Northwest Chapter of the Lupus Foundation of America
Pain syndromes
- Pain Syndromes (PRINTO)
Scleroderma
- Scleroderma (PRINTO)
- Scleroderma Foundation
Sjögren's syndrome
- Sjögren’s Syndrome Foundation
- Sjögren's Support Group
Vasculitis
- Rare Juvenile Primary Systemic Vasculitis (PRINTO)

Treatment-Specific Resources

Infusion Services (PDF)

General Rheumatology Resources

Sun Safety for Your Child (PDF) (Dari) (Simplified Chinese) (Spanish) (Vietnamese)

Contact Us

For more information, contact Rheumatology at 206-987-2057. If you would like an appointment, ask your child’s primary care provider for a referral.

Providers, see how to refer a patient.

Fax (for providers): 206-985-3396

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.