Resources that may be helpful for finding support and information.
The following are support and informational resources for families who have a child with a craniofacial condition. For help with these resources please contact one of the social workers in the Craniofacial Center 206-987-2528.
Seattle Children’s Craniofacial Center website
seattlechildrens.org/clinics/craniofacial/services/surgery/ (English)
A great place to start learning. Includes links to information and support, answers to commonly asked questions, research and advances, recommended reading, glossary of terms, contact information and more.
Craniofacial information stand
Located outside of the Craniofacial Clinic, this stand is kept stocked with information on making the most of your visit, events at Camp Korey, the Social Security application process, general resources and more.
Parent Support Program
This program gives families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. Parent matches are made with the intention of providing emotional, practical and informational support. Conversations between parents typically take place over the phone. For more information, see ‘Parent Support Program’ seattlechildrens.org/pdf/pe2674.pdf or contact the Parent Support Program coordinator at 206-987-1119 or email [email protected].
Summer Picnics
Summer picnics are yearly events held at a park or zoo near the hospital. They are a wonderful opportunity to meet other families in a casual, relaxed environment. Kids and families dealing with similar challenges meet each other and find understanding and support. Call the Craniofacial Center for more information about the picnics.
Seattle Children’s Craniofacial Center private Facebook group
facebook.com/groups/craniofacialfamilies/ (English)
This supportive and welcoming community encourages the sharing of triumphs, tributes, issues and concerns. Open only to patients and families of the Seattle Children’s Craniofacial Center, it is moderated by the Craniofacial Center Family Liaison.
- If you don’t have a Facebook account, go to facebook.com and follow the directions to create an account.
- Log into your Facebook account.
- Search “Seattle Children’s Craniofacial Family Chat.”
- Click the “Join Group” button.
- Receive confirmation message that says, “Request Sent.”
- This request goes to the group manager for approval.
- Within a week, you will receive a message (via Facebook Inbox) confirming your addition to the group.
- Participate by adding something new or helping the group out with what you know!
myFace Organization
myface.org (English)
myFace is an organization committed to transforming the lives of children and adults with facial differences. It provides access to holistic comprehensive care, education, resources and support.
To Learn More
- Craniofacial Social Work
206-987-2528 - Ask your child’s healthcare provider
- seattlechildrens.org/patient-education
Free Interpreter Services
- In the hospital, ask your nurse.
- From outside the hospital, call the toll-free Family Interpreting Line, 1-866-583-1527. Tell the interpreter the name or extension you need.
