Support Groups

COVID-19 Response

Due to COVID-19 groups are meeting virtually, please contact the group you are interested in directly for log-in details and more information.

A variety of support groups and gatherings take place at Seattle Children's to help families connect with others who share similar challenges and joys in the care of their children with ongoing health needs.

Sponsored groups are organized and facilitated by hospital staff or staff/family/community partnerships.

Hosted groups are organized and facilitated by volunteer family leaders or community organizations.

If you attend or have attended a Seattle Children's support group, we would like to hear about your experience. Please submit your feedback by completing this short survey. Thank you.

Featured Group

Parent/Caregiver Support Program

Sponsored by Seattle Children's

The Parent Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. Parent "matches" are made with the intention of providing emotional, practical and informational support.

Brain/Neurosurgery

  • Sponsored by Seattle Children's in partnership with Children’s Brain Tumor Foundation

    This group meets on the first Wednesday of every month, providing an opportunity for patients/survivors and parents/caregivers to connect with each other and engage in a facilitated group discussion. Group facilitators will provide relevant discussion topics, light snacks, and encourage participants to share information, stories, successes and challenges faced in the context of brain tumor diagnosis and treatment. There are also fun, organized activities provided for children and youth 10 and older. This is a drop-in group with no associated fee.

    • For more information please email Wade Iwata.
  • Sponsored by Seattle Children's in partnership with HeadStrong, the Brain Injury Alliance of Washington, Camp Korey and Pediatric Stroke Warriors.

    This group meets three times throughout the year, providing an opportunity for parents and caregivers to connect and share information, stories, successes and challenges faced when caring for a child or youth living with a brain injury. There are also fun, organized activities provided for the children and youth ranging in ages from 5 to 17 years old. Siblings are also welcome to attend; free childcare is available for children under 5 years of age.

    • For more information, to find out when the next meeting is taking place, or to register, please contact Sharon Ashman at 206-987-2144or by email. Space is limited.

Diabetes/Endocrinology

  • Sponsored by Seattle Children’s

    This is a fun and informal workshop for middle schoolers (11–14 years old), focused on living with diabetes. Topics can include:

    • Talking to friends and classmates about diabetes
    • Coping with the ups and downs of diabetes
    • Bullying, teasing and just feeling different
    • Dealing with high and low blood sugars
    • Making room for diabetes care in sports, activities and hobbies
    • For more information please email Jessica Koppy.
  • Hosted at Seattle Children's

    Little Kids With Insulin Dependent Diabetes (L’Kidds) is a parent-led support group for parents of infants, toddlers, preschoolers and elementary school age kids with type 1 diabetes. We meet Saturday mornings every other month, from 10 a.m. to noon at Seattle Children's Hospital. Childcare is available upon request. We also host a fun family picnic each July.

    • For more information or to RSVP, please see our flyer(PDF) or email Sarah Klippel, parent facilitator.

Grief Support

  • Hosted at Seattle Children’s in partnership with the Pediatric Congenital Heart Association The Pediatric Congenital Heart Association of Washington offers support to heart families through hospital care kits, inpatient visits and family-friendly activities around the greater Puget Sound region throughout the year. Find information about our latest news and events on our Facebook page or send us an email. We want to connect with heart families and look forward to meeting you! 

Parents and Caregivers

  • Hosted at Seattle Children’s

    Seattle Parents of Preemies is a peer-led support group for parents of preemies and infants that experienced a prolonged NICU stay. Through in-person and online meetings, our group offers members community, support and education on topics relating to prematurely born and medically fragile children. Our members come from all Seattle regional area NICUs and we welcome families desiring support, even those living outside of Washington state.

    • To learn more about our group and find meeting times and locations, please visit our websiteor email Arlene Smith.
  • Sponsored by Seattle Children’s

    The Parent Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. Parent “matches” are made with the intention of providing emotional, practical and informational support.

  • Hosted at Seattle Children’s

    The Center for Chronic Illness offers a monthly supportive group for parents of children who are hospitalized due to health challenges. 

Other

  • Sponsored by Seattle Children's

    Every quarter, Seattle Children's Rehabilitation Medicine staff hosts a midday luncheon for families who have children with arthrogryposis. These luncheons coincide with the quarterly Arthrogryposis Clinic dates. They are a time to meet other families, share a meal together and learn from staff and one another.

    • For more information, contact the Rehabilitation Medicine nurse line at 206-987-2114, option 4.
  • Sponsored by Seattle Children’s

    Join us for a monthly gathering of parents/caregivers as we provide each other with community and support, and discuss relevant topics with group facilitation. Topics include: receiving a diagnosis, educating yourself and others, community support, caring for the caregiver, and peer-to-peer connections. This group is FREE and open to all adult caregivers of children who have a diagnosis of Cerebral Palsy and receive care at Seattle Children’s. Group meets the 3rd Sunday of every month from 5:30 p.m. to 6:30 p.m. All meetings are held virtually.

    Please RSVP by contacting Kit Pearce, Cerebral Palsy program manager by email or by phone at 206-987-6918. For more information read the group flyer (PDF).

  • This supportive and welcoming community encourages the sharing of triumphs, tributes, issues and concerns. The Facebook group is moderated by the Craniofacial Center family liaison and only open to patients and families of Seattle Children’s Craniofacial Center.

    1. If you don’t have a Facebook account, go to comand follow the directions to create an account.
    2. Log into your Facebook account.
    3. Search for “Seattle Children’s Craniofacial Family Chat.”
    4. Click the “Join Group” button.
    5. Receive a confirmation message that says “Request Sent.”
    6. This request goes to the group manager for approval.
    7. Within a week, you will receive a message (via Facebook Inbox) confirming your addition to the group.
    8. Participate by adding something new or helping the group out with what you know!
  • Sponsored by Seattle Children’s

    This group is for middle and high school youth who are deaf and hard of hearing, and use sign language as one of their ways of communicating. The goals of the group include:

    • Receive support from peers
    • Increase self-awareness
    • Practice communication, social and problem-solving skills
    • Foster self-esteem
    • Develop self-advocacy skills
    • For more information please email Julia Petersen, or call 206-257-7199(voice/videophone; English and Spanish).
  • Sponsored by Seattle Children’s

    Seattle Children’s Celiac Program hosts a provider led quarterly support group for children and families with celiac disease. Topics to be discussed include challenges with gluten-free lifestyle and nutrition. This is a time where kids can meet with others with celiac to share their experiences and create a community. We welcome all patients, parents, caregivers and siblings affected by celiac. Read more about the Seattle Children's Celiac Program.

    • Please email us to be added to the distribution list or register.
  • Sponsored by Seattle Children's

    Sibshops provide peer support and education for brothers and sisters of children with special health or developmental needs. These are lively events that include fun activities, games, special guests, discussion and information sharing. Sibshops sessions for different age groups are typically offered every other month on Saturdays throughout the school year.

  • Hosted at Seattle Children's

    Raising a child who is transgender, gender diverse, or simply exploring their gender is sometimes a daunting task.

    According to most of our families, the single, most crucial resource they found was the opportunity to converse with other families – those with shared experience, and even those whose experience was quite different. We offer a growing number of virtual support groups to help make these important connections. Our hope at Trans Families is that your connection with other parents will illuminate the pathways to support a strong, resilient, and happy child.

    Trans Families (PDF) support groups are for families with trans and gender diverse children. We screen all attendees to ensure that the groups are safe.

    • To sign up for a membership with Trans Families, please click this link to start your intake.
    • For more information, contact Trans Families at 855-4-GENDER (855-443-6337) or by email.