Support Groups

COVID-19 Response

Due to COVID-19 groups are meeting virtually, please contact the group you are interested in directly for log-in details and more information.

A variety of support groups and gatherings take place at Seattle Children's to help families connect with others who share similar challenges and joys in the care of their children with ongoing health needs.

Sponsored groups are organized and facilitated by hospital staff or staff/family/community partnerships.

Hosted groups are organized and facilitated by volunteer family leaders or community organizations.

If you attend or have attended a Seattle Children's support group, we would like to hear about your experience. Please submit your feedback by completing this short survey. Thank you.

Featured Group

Parent/Caregiver Support Program

Sponsored by Seattle Children's

The Parent Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. Parent "matches" are made with the intention of providing emotional, practical and informational support.

Diabetes/Endocrinology

  • Sponsored by Seattle Children’s

    This is a fun and informal workshop for middle schoolers (11–14 years old), focused on living with diabetes. Topics can include:

    • Talking to friends and classmates about diabetes
    • Coping with the ups and downs of diabetes
    • Bullying, teasing and just feeling different
    • Dealing with high and low blood sugars
    • Making room for diabetes care in sports, activities and hobbies

     

  • Group meetings are gathering virtually until further notice.

    Little Kids With Insulin Dependent Diabetes (L’Kidds) is a parent-led support group for parents of infants, toddlers, preschoolers and elementary school age kids with diabetes.

    We meet Saturday mornings every other month, from 10 a.m. to noon. We also host a fun family picnic each July.

    20201 Dates:
    January 30
    March 20
    May 8
    July 10 (park picnic pending health guidelines)
    September 25
    November 13

Grief Support

  • Sponsored by Seattle Children's

    Seattle Children's Journey Program is for any family who has experienced the death of a child. The Journey Program provides support to help families cope with the grieving process.We offer support grief groups that are facilitated by trained and caring staff. We have a monthly drop-in support group that is currently meeting virtually, and closed groups that require an assessment to join. At this time, we are not able to form closed groups, due to COVID restrictions.

  • Hosted at Seattle Children's

    This parent-led group provides support for anyone who has experienced the loss of a child through stillbirth, miscarriage or newborn death. PS groups are led by trained parent volunteers from the community who themselves have experienced the loss of a child. PS groups are offered throughout the Puget Sound area.

    • Visit our website for current meeting locations, dates and times.

Heart/Cardiology

  • Hosted by Seattle Children’s in partnership with Conquering CHD of WA

    Conquering Congenital Heart Disease of Washington offers support to heart families through hospital care kits, inpatient visits (currently on hold) and family-friendly activities around the greater Puget Sound region, throughout the year. Find information about our latest news and events on our Conquering CHD Facebook page page or via the Conquering CHD of WA site.

    We want to connect with heart families and look forward to meeting you!

Parents and Caregivers

  • Sponsored by Seattle Children's

    The Parent Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. Parent "matches" are made with the intention of providing emotional, practical and informational support.

     
  • Hosted at Seattle Children’s

    The Center for Chronic Illness offers a monthly supportive group for parents of children who are hospitalized due to health challenges. Learn more (PDF).

Additional Support Groups

  • Sponsored by Seattle Children's

    Every quarter, Seattle Children's Rehabilitation Medicine staff hosts a midday luncheon for families who have children with arthrogryposis. These luncheons coincide with the quarterly Arthrogryposis Clinic dates. They are a time to meet other families, share a meal together and learn from staff and one another.

    • For more information, contact the Rehabilitation Medicine nurse line at 206-987-2114, option 4.
  • Sponsored by Seattle Children’s

    Seattle Children’s Celiac Program hosts a provider led quarterly support group for children and families with celiac disease. Topics to be discussed include challenges with gluten-free lifestyle and nutrition. This is a time where kids can meet with others with celiac to share their experiences and create a community. We welcome all patients, parents, caregivers and siblings affected by celiac. Read more about the Seattle Children's Celiac Program.

    • Please email us to be added to the distribution list or register.
  • Sponsored by Seattle Children’s

    Join us for a monthly gathering of parents/caregivers as we provide each other with community and support, and discuss relevant topics with group facilitation. Topics include: receiving a diagnosis, educating yourself and others, community support, caring for the caregiver, and peer-to-peer connections. This group is FREE and open to all adult caregivers of children who have a diagnosis of Cerebral Palsy and receive care at Seattle Children’s. Group meets the 3rd Sunday of every month from 5:30 p.m. to 6:30 p.m. All meetings are held virtually.

  • This supportive and welcoming community encourages the sharing of triumphs, tributes, issues and concerns. The Facebook group is moderated by the Craniofacial Center family liaison and only open to patients and families of Seattle Children’s Craniofacial Center.

    1. If you don’t have a Facebook account, go to facebook.com and follow the directions to create an account.
    2. Log into your Facebook account.
    3. Search for “Seattle Children’s Craniofacial Family Chat.”
    4. Click the “Join Group” button.
    5. Receive a confirmation message that says “Request Sent.”
    6. This request goes to the group manager for approval.
    7. Within a week, you will receive a message (via Facebook Inbox) confirming your addition to the group.
    8. Participate by adding something new or helping the group out with what you know!
  • Sponsored by Seattle Children’s

    This group is for middle and high school youth who are deaf and hard of hearing, and use sign language as one of their ways of communicating. The goals of the group include:

    • Receive support from peers
    • Increase self-awareness
    • Practice communication, social and problem-solving skills
    • Foster self-esteem
    • Develop self-advocacy skills

     

  • Hosted at Seattle Children’s

    Seattle Parents of Preemies is a peer-led support group for parents of preemies and infants that experienced a prolonged NICU stay. Through in-person and online meetings, our group offers members community, support and education on topics relating to prematurely born and medically fragile children. Our members come from all Seattle regional area NICUs and we welcome families desiring support, even those living outside of Washington state.

    • To learn more about our group and find meeting times and locations, please visit our website or email Arlene Smith.
  • Sponsored by Seattle Children's

    Sibshops provide peer support and education for brothers and sisters of children with special health or developmental needs. These are lively events that include fun activities, games, special guests, discussion and information sharing. Sibshops sessions for different age groups are typically offered every other month on Saturdays throughout the school year.

  • Hosted at Seattle Children's

    Raising a child who is transgender, gender diverse, or simply exploring their gender is sometimes a daunting task.

    According to most of our families, the single, most crucial resource they found was the opportunity to converse with other families – those with shared experience, and even those whose experience was quite different. We offer a growing number of virtual support groups to help make these important connections. Our hope at Trans Families is that your connection with other parents will illuminate the pathways to support a strong, resilient, and happy child.

    Trans Families (PDF) support groups are for families with trans and gender diverse children. We screen all attendees to ensure that the groups are safe.

    • To sign up for a membership with Trans Families, please click this link to start your intake.
    • For more information, contact Trans Families at 855-4-GENDER (855-443-6337) or by email.
  • Hosted at Seattle Children’s

    The North West Scleroderma Foundation chapter currently meets monthly on Zoom. Meetings are open to anyone interested in Scleroderma including patients, caregivers, family, and friends.