Support Groups

A variety of support groups and gatherings take place at Seattle Children's to help families connect with others who share similar challenges and joys in the care of their children with ongoing health needs.

Sponsored groups are organized and facilitated by hospital staff or staff/family/community partnerships.

Hosted groups are organized and facilitated by volunteer family leaders or community organizations.

If you attend or have attended a Seattle Children's support group, we would like to hear about your experience. Please submit your feedback by completing this short survey. Thank you.


Brain Tumor Support Group

Sponsored by Seattle Children's in partnership with Children’s Brain Tumor Foundation

This group meets on the first Wednesday of every month, providing an opportunity for patients/survivors and parents/caregivers to connect with each other and engage in a facilitated group discussion. Group facilitators will provide relevant discussion topics, light snacks, and encourage participants to share information, stories, successes and challenges faced in the context of brain tumor diagnosis and treatment. There are also fun, organized activities provided for children and youth 10 and older. This is a drop-in group with no associated fee.

  • For more information or to RSVP, please see our flyer (PDF) or email Wade Iwata.

Pediatric Brain Injury Support Group

Sponsored by Seattle Children's in partnership with HeadStrong, the Brain Injury Alliance of Washington, Camp Korey and Pediatric Stroke Warriors.

This group meets three times throughout the year, providing an opportunity for parents and caregivers to connect and share information, stories, successes and challenges faced when caring for a child or youth living with a brain injury. There are also fun, organized activities provided for the children and youth ranging in ages from 5 to 17 years old. Siblings are also welcome to attend; free childcare is available for children under 5 years of age.

  • For more information, to find out when the next meeting is taking place, or to register, please contact Sharon Ashman at 206-987-2144 or by email. Space is limited.


Diabetes and Me

Sponsored by Seattle Children’s

This is a fun and informal workshop for middle schoolers (11–14 years old), focused on living with diabetes. Topics can include:

  • Talking to friends and classmates about diabetes
  • Coping with the ups and downs of diabetes
  • Bullying, teasing and just feeling different
  • Dealing with high and low blood sugars
  • Making room for diabetes care in sports, activities and hobbies

Little Kids With Insulin Dependent Diabetes (L’Kidds)

Hosted at Seattle Children's

Little Kids With Insulin Dependent Diabetes (L’Kidds) is a parent-led support group for parents of infants, toddlers, preschoolers and elementary school age kids with type 1 diabetes. We meet Saturday mornings every other month, from 10 a.m. to noon at Seattle Children's Hospital. Childcare is available upon request. We also host a fun family picnic each July.

  • For more information or to RSVP, please see our flyer (PDF) or email Sarah Klippel, parent facilitator.

Grief Support

Journey Program

Sponsored by Seattle Children's

Seattle Children's Journey Program is for any family who has experienced the death of a child. The Journey Program provides support to help families cope with death, loss and the grieving process. Our support groups are facilitated by trained and caring staff.

Parent Support (PS)

Hosted at Seattle Children's

This parent-led group provides support for anyone who has experienced the loss of a child through stillbirth, miscarriage or newborn death. PS groups are led by trained parent volunteers from the community who themselves have experienced the loss of a child. PS groups are offered throughout the Puget Sound area.

  • Visit our website for current meeting locations, dates and times.


Congenital Heart Family Events

Hosted at Seattle Children’s in partnership with the Pediatric Congenital Heart Association

The Pediatric Congenital Heart Association of Washington offers support to heart families through hospital care kits, inpatient visits and family-friendly activities around the greater Puget Sound region throughout the year. Find information about our latest news and events on our Facebook page or send us an email. We want to connect with heart families and look forward to meeting you! 

Parents and Caregivers

NICU and Preemie Parent Support Group

Hosted at Seattle Children's

Seattle Parents of Preemies is a peer-led support group for parents of preemies and infants that experienced a prolonged NICU stay. Through in-person and online meetings, our group offers members community, support and education on topics relating to prematurely born and medically fragile children. Our members come from all Seattle regional area NICUs and we welcome families desiring support, even those living outside of Washington state.

  • To learn more about our group and find meeting times and locations, please visit our website or email Arlene Smith.

Parent/Caregiver Coffee Hours

Sponsored by Seattle Children's Family Resource Center in partnership with Seattle Ronald McDonald House

The goal of the Parent/Caregiver Coffee Hours is to give parents of children staying at the hospital an opportunity to take a break from their child’s bedside and take care of themselves for a bit. We provide coffee and snacks, but – even more importantly – a safe space to connect with other parents and find support during what can be an incredibly stressful time. The coffee hours take place weekly on Mondays and Wednesdays from 3 to 4 p.m. in the Family Resource Center, which is located on level 7, River zone, by the Frog elevators.

  • For more information please see our flyer (PDF) or email the Family Resource Center.
  • The Seattle Ronald McDonald House supports seriously ill children and their families. In addition to providing housing, they provide essential amenities and a support system of caring volunteers, staff and other families facing the challenges of caring for a seriously ill child.

Parent/Caregiver Support Program

Sponsored by Seattle Children's

The Parent Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. Parent "matches" are made with the intention of providing emotional, practical and informational support.

Parenting Chronic Illness

Hosted at Seattle Children's

The Center for Chronic Illness offers a monthly supportive group for parents of children who are hospitalized due to health challenges. The group is held the second Monday of each month at Seattle Children’s Family Resource Center.

Pediatric Oncology Support Group

Hosted at Seattle Children’s in partnership with Momcology

This is a bi-monthly parent-led Momcology support group, co-facilitated by members of the Seattle Children’s pediatric oncology team. Sessions will include activities, information, and opportunities for peer-to-peer support for adult caregivers of children with cancer. The group is free and open to all adult caregivers of children who have been or are being treated for cancer.

Group meets bi-monthly from 10 a.m. to 12 p.m. at Seattle Children’s Hospital. For more information view the program flyer (PDF) or email Julie Martin, Momcology program director and parent facilitator.


Arthrogryposis Family Networking

Sponsored by Seattle Children's

Every quarter, Seattle Children's Rehabilitation Medicine staff hosts a midday luncheon for families who have children with arthrogryposis. These luncheons coincide with the quarterly Arthrogryposis Clinic dates. They are a time to meet other families, share a meal together and learn from staff and one another.

  • For more information, contact the Rehabilitation Medicine nurse line at 206-987-2114, option 4.

Craniofacial Center Facebook Group

This supportive and welcoming community encourages the sharing of triumphs, tributes, issues and concerns. The Facebook group is moderated by the Craniofacial Center family liaison and only open to patients and families of Seattle Children’s Craniofacial Center.

  1. If you don’t have a Facebook account, go to and follow the directions to create an account.
  2. Log into your Facebook account.
  3. Search for “Seattle Children’s Craniofacial Family Chat.”
  4. Click the “Join Group” button.
  5. Receive confirmation message that says “Request Sent.”
  6. This request goes to the group manager for approval.
  7. Within a week, you will receive a message (via Facebook Inbox) confirming your addition to the group.
  8. Participate by adding something new or helping the group out with what you know!

Deaf and Hard of Hearing Support Group

Sponsored by Seattle Children’s

This group is for middle and high school youth who are deaf and hard of hearing, and use sign language as one of their ways of communicating. The goals of the group include:

  • Receive support from peers
  • Increase self-awareness
  • Practice communication, social and problem solving skills
  • Foster self-esteem
  • Develop self-advocacy skills

For more information or to RSVP please see our flyer (PDF) (Spanish), email Julia Petersen, or call 206-257-7199 (voice/videophone; English and Spanish).

Celiac Support Group

Sponsored by Seattle Children’s

Seattle Children’s Celiac Program hosts a provider led quarterly support group for children and families with celiac disease. Topics to be discussed include challenges with gluten-free lifestyle and nutrition. This is a time where kids can meet with others with celiac to share their experiences and create a community. We welcome all patients, parents, caregivers and siblings affected by celiac. Read more about the Seattle Children's Celiac Program.

  • Please email us to be added to the distribution list or register.

Liver and Intestinal Rehab Support Group

Sponsored by Seattle Children's

  • Monthly drop-in group is open to inpatient LIFT caregivers and outpatient Intestinal Rehab Program caregivers.
  • Group will encourage you to share your perspective, successes and challenges in caring for a child with liver and intestinal failure, or short bowel syndrome.
  • Topics include: grief, loss, emotional regulation, coping skills.

For more information or to RSVP, please see the group flyer (PDF) or email Michael O’Hara, LICSW.


Sponsored by Seattle Children's

Sibshops provide peer support and education for brothers and sisters of children with special health or developmental needs. These are lively events that include fun activities, games, special guests, discussion and information sharing. Sibshops sessions for different age groups are typically offered every other month on Saturdays throughout the school year.

Transgender and Gender-Diverse Children Support Group

Hosted at Seattle Children's

Does your child prefer to wear the clothes of the “opposite” gender or insist that he is really a girl or that she is really a boy? Do you struggle with how best to support your child (of any age) while helping them stay safe? Is your child transgender or is this just a phase? You are not alone. Gender Diversity offers support groups where you can share your experiences with other parents and family members. For the safety and confidentiality of all families, an intake call is required before attending our support groups. Please plan ahead so our busy staff has time to complete this intake and get you to one of our groups in a timely way.

  • For more information about how to join these groups, contact Gender Diversity at 855-4-GENDER (855-443-6337) or by email.
  • Seattle Children’s Gender Clinic is requesting feedback about patients’ experiences. If your family has been seen at the Gender Clinic, please complete a short survey
    • Parent Group I: For families with transgender and gender-diverse children from ages 3 to 9. Meets on the first Sunday of every month from 4 to 6 p.m.
      • There is a facilitated play group meeting at the same time in an adjacent room. Siblings are welcome. (Babies in diapers are OK with parental supervision.)
    • Parent Group II: For families of transgender and gender-diverse tweens ages 9 to 13. Meets on the second Sunday of every month from 4 to 6 p.m.
      • The Gender Diversity facilitated tween group meets at the same time in an adjacent room. Siblings are welcome.
    • Parent Group III: For families with transgender and gender-diverse teens ages 14 to 20. Meets on the third Sunday of every month from 4:30 to 6:30 p.m.
      • The Gender Diversity facilitated teen group, for transgender, gender-diverse and questioning teens, meets at the same time in an adjacent room. Siblings are welcome.
    • Parent Group IV: For families with adult-age transgender and gender-diverse children. Meets on the third Sunday of every month from 4:30 to 6:30 p.m. in the same space as our teen group.
      • Please note that there is no meeting for trans adults – just their families.