Support Groups

COVID-19 Response

Due to COVID-19 groups are meeting virtually, please contact the group you are interested in directly for log-in details and more information.

A variety of support groups and gatherings take place at Seattle Children's to help families connect with others who share similar challenges and joys in the care of their children with ongoing health needs. We also offer other resources for patients and families including food, housing, transportation and financial assistance resources at Seattle Children’s and in the community.

Sponsored groups are organized and facilitated by hospital staff or staff/family/community partnerships.

Hosted groups are organized and facilitated by volunteer family leaders or community organizations.

If you attend or have attended a Seattle Children's support group, we would like to hear about your experience. Please submit your feedback by completing this short survey. Thank you.

Featured Program

Parent/Caregiver Support Program

Sponsored by Seattle Children's

The Parent/Caregiver Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. "Matches" are made with the intention of providing emotional, practical, and informational support.

Diabetes/Endocrinology

  • Sponsored by Seattle Children’s

    This is a fun and informal workshop for middle schoolers (11–14 years old), focused on living with diabetes. Topics can include:

    • Talking to friends and classmates about diabetes
    • Coping with the ups and downs of diabetes
    • Bullying, teasing and just feeling different
    • Dealing with high and low blood sugars
    • Making room for diabetes care in sports, activities and hobbies

    View flyer (PDF) for more information or email Jessica Koppy, MSW to reserve a spot, for more information, for Zoom links, or updated group status.

  • Hosted by Seattle Children's

    Group meetings are gathering virtually until further notice.

    Little Kids With Insulin Dependent Diabetes (L’Kidds) is a parent-led support group for parents of infants, toddlers, preschoolers and elementary school age kids with diabetes.

    We meet quarterly, from 10 a.m. to noon, and host a fun family picnic each July.

    2022 Dates:
    February 5
    May 7
    July 30
    November 12

Grief Support

  • Sponsored by Seattle Children’s

    Seattle Children's Journey Program is for any family who has experienced the death of a child. The Journey Program provides support to help families cope with the grieving process. We offer support grief groups that are facilitated by trained and caring staff. We have a monthly drop-in support group that is currently meeting virtually, and closed groups that require an assessment to join. At this time, we are not able to form closed groups, due to COVID restrictions.

  • Hosted by Seattle Children’s Journey Program

    The Journey Program is hosting a drop-in young adult support group for youth ages 18-25. The group meets on the third Tuesday of each month. For more information contact Emily Beauchemin.

    • Please see our flyer (PDF)
  • Hosted at Seattle Children's

    This parent-led group provides support for anyone who has experienced the loss of a child through stillbirth, miscarriage or newborn death. PS groups are led by trained parent volunteers from the community who themselves have experienced the loss of a child. PS groups are offered throughout the Puget Sound area.

    • Visit our website for current meeting locations, dates and times.

Heart/Cardiology

  • Hosted by Seattle Children’s in partnership with Conquering CHD of WA

    Conquering Congenital Heart Disease of Washington offers support to heart families through hospital care kits, inpatient visits (currently on hold) and family-friendly activities around the greater Puget Sound region, throughout the year. Find information about our latest news and events on our Conquering CHD Facebook page page or via the Conquering CHD of WA site.

    We want to connect with heart families and look forward to meeting you!

Parents and Caregivers

  • Sponsored by Seattle Children's

    The Parent/Caregiver Support Program (PDF) offers families of children with special health needs a way to connect with an experienced volunteer parent who has been through a similar situation with their own child. "Matches" are made with the intention of providing emotional, practical, and informational support.

    • For more information, email Maria Cervantes, family support specialist. For more information on partnering with us and volunteering with the Parent/Caregiver Support Program visit, Partnering with Us.

Additional Support Groups

  • Sponsored by Seattle Children’s

    Seattle Children’s Celiac Program hosts a provider led quarterly support group for children and families with celiac disease. Topics to be discussed include challenges with gluten-free lifestyle and nutrition. This is a time where kids can meet with others with celiac to share their experiences and create a community. We welcome all patients, parents, caregivers and siblings affected by celiac. Read more about the Seattle Children's Celiac Program.

    • Please email us to be added to the distribution list or register.
  • Sponsored by Seattle Children’s

    Join us for an in-person monthly gathering (PDF) of parents/caregivers as we provide each other with community and support and discuss relevant topics with group facilitation. Topics include: receiving a diagnosis, educating yourself and others, community support, caring for the caregiver, and peer-to-peer connections. This group is free and open to all adult caregivers of children who have a diagnosis of Cerebral Palsy and receive care at Seattle Children’s. Group meets the 3rd Sunday of every month from 5:30 to 6:30 p.m. Group meets in-person, at a local gathering space.

  • Sponosored by Seattle Children's.

    This supportive and welcoming community encourages the sharing of triumphs, tributes, issues and concerns. The Facebook group is moderated by the Craniofacial Center family liaison and only open to patients and families of Seattle Children’s Craniofacial Center.

    1. If you don’t have a Facebook account, go to facebook.com and follow the directions to create an account.
    2. Log into your Facebook account.
    3. Search for “Seattle Children’s Craniofacial Family Chat.”
    4. Click the “Join Group” button.
    5. Receive a confirmation message that says “Request Sent.”
    6. This request goes to the group manager for approval.
    7. Within a week, you will receive a message (via Facebook Inbox) confirming your addition to the group.
    8. Participate by adding something new or helping the group out with what you know!
  • Sponsored by Seattle Children’s

    This group is for middle and high school youth who are deaf and hard of hearing, and use sign language as one of their ways of communicating. The goals of the group include:

    • Receive support from peers
    • Increase self-awareness
    • Practice communication, social and problem-solving skills
    • Foster self-esteem
    • Develop self-advocacy skills

    For more information please email Julia Petersen, or call 206-257-7199 (voice/videophone; English and Spanish).

  • Sponsored by Seattle Children’s
    Funded by the Childhood Communication Center’s Endowment Fund

    • Do you have a cochlear implant or a hearing aid?
    • Do you communicate with spoken English?
    • Do you want to connect with others?
    • Do you ever wonder where you fit in?
    • Do you want to have some fun?

    If you answered yes to any of these questions, then you might want to join one of the social groups offered through Seattle Children’s Hospital. Groups are currently meeting via Zoom due to the COVID-19 pandemic.

    Kids and teens with hearing loss in 1st through 12th grades who communicate through spoken English are welcome to attend fun groups to interact, socialize and learn with Rachel Barr, AUD, CCC-A; Terra Boulse-Archaro, MA, CCC-SLP; Sheridan Frank, AUD, CCC-A; Whitney Kidd, AUD-CCC-A; Amy Melick, PhD; Meg Pearson, AUD CCC-A; and Lisa Yamaguchi, AUD CCC-A.

    There are 4 Zoom groups depending on your child’s current grade level:

    • 1st–2nd graders from 4:30 p.m. to 5:30 p.m. on the 3rd Thursday of the month
    • 3rd–5th graders from 6 p.m. to 8 p.m. on the 3rd Thursday of the month
    • 6th–8th graders from 6 p.m. to 8 p.m. on the 2nd Tuesday of the month
    • 9th–12th graders from 6 p.m. to 8 p.m. on the 1st Thursday of the month

    RSVPs for each group are required to ensure we have enough space due to the Zoom format.

    Email Amy Melick at amy.melick@seattlechildrens.org if you are interested in attending or want more information. 

  • Hosted at Seattle Children’s

    The North West Scleroderma Foundation chapter currently meets monthly on Zoom. Meetings are open to anyone interested in Scleroderma including patients, caregivers, family, and friends.

  • Sponsored by Seattle Children's

    Sibshops provide peer support and education for brothers and sisters of children with special health or developmental needs. These are lively events that include fun activities, games, special guests, discussion and information sharing. Sibshops sessions for different age groups are typically offered every other month on Saturdays throughout the school year.