Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Rheumatology

Patient and Family Education

We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.

Resources at Seattle Children’s

Rheumatology: What to expect and how to prepare
Infusion Services: What to expect and how to prepare (PDF)
How to prepare for your visit
Transportation and lodging
Hospital services
Paying for care

Condition-Specific Resources

Links marked “(PRINTO)” are maintained by the Pediatric Rheumatology International Trials Organization. These materials are available in many languages.

Arthritis
- Arthritis Foundation
- Juvenile Idiopathic Arthritis (PRINTO)
- Juvenile Spondyloarthropathies (PRINTO)
- Lyme Arthritis (PRINTO)
Behçet's disease
- Behçet's Disease (PRINTO)
Chronic recurrent multifocal osteomyelitis (CRMO)
Watch these videos from the 2025 Chronic Recurrent Multifocal Osteomyelitis (CRMO) Family Conference hosted by Seattle Children's:
- Breakout Session: Dealing With Insurance (video 45:51)
- Breakout Session: Advocacy and Accommodation (video 45:08)
- Breakout Session: Coping With Common CRMO Procedures (video 42:27)
- Breakout Session: Transition to Adult Care (video 1:30:20)
- Breakout Session: Pain Management (video 48:07)
- Research Update: CNO (video 41:31)
Other CRMO resources:
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) (PDF) (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Roadmap for Your Child’s Treatment (Spanish)
- Chronic Recurrent Multifocal Osteomyelitis (CRMO) Through the Lens of Patients and Families (video 1:12)
- Seattle Children’s CRMO Family Conference (video 1:24)
- CRMO Family Group on Facebook
- Kaila Komfort, a nonprofit organization that sends a care package to people recently diagnosed with CRMO
Dermatomyositis
- Juvenile Dermatomyositis (PRINTO)
- Juvenile Idiopathic Arthritis (PRINTO)
Hypermobility joint syndrome
- Hypermobility – Juvenile (American College of Rheumatology) (Spanish)
Kawasaki disease
- Kawasaki disease
- Kawasaki Disease (PDF) (Spanish)
- Kawasaki Disease (PRINTO)
Lupus
- Systemic Lupus Erythematosus (PRINTO)
- Pacific Northwest Chapter of the Lupus Foundation of America
Pain syndromes
- Pain Syndromes (PRINTO)
Scleroderma
- Scleroderma (PRINTO)
- Scleroderma Foundation
Sjögren's syndrome
- Sjögren’s Syndrome Foundation
- Sjögren's Support Group
Vasculitis
- Rare Juvenile Primary Systemic Vasculitis (PRINTO)

Treatment-Specific Resources

Infusion Services (PDF)

General Rheumatology Resources

Requesting Accommodations for Medical Needs (PDF) (Spanish)
Sun Safety for Your Child (PDF) (Dari) (Simplified Chinese) (Spanish) (Ukrainian) (Vietnamese)

Contact Us

For more information, contact Rheumatology at 206-987-2057. If you would like an appointment, ask your child’s primary care provider for a referral.

Providers, see how to refer a patient.

Fax (for providers): 206-985-3396