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Treatments and Services

Craniofacial Genetics Clinic

What is the Craniofacial Genetics Clinic?

At the Craniofacial Genetics Clinic, you can learn more about possible genetic causes of health conditions  such as cleft lip and/or cleft palate, craniosynostosis, and other facial differences.

  • Some craniofacial conditions are caused by a change (variant) in a single . Other times they happen because of changes in (the structures in our cells that hold the genes).
  • Sometimes a child inherits a gene variant from one or both parents. Other times a new genetic change causes a condition.
  • In some conditions, both genetic and environmental factors play a role.
  • Sometimes the cause is not known.

Knowing more about possible genetic causes of your child’s condition may guide you in making decisions about:

  • Your child’s medical care
  • Future pregnancies

Our goal is to help you make informed medical and personal decisions.

Who can benefit from genetic counseling?

  • Parents of a child with a single facial difference, such as cleft lip or palate. We explain the chance of having another child with that birth defect.
  • Parents of a child with more than one  facial difference or health problem. We work to diagnose the condition that is causing the differences. After a diagnosis is found, we give you information on your child’s condition and help you find resources in your community.
  • Parents of a child with a known genetic condition. We expect to learn more about genetic conditions over time, so can update you with any new information about your child’s condition. We also talk about how a genetic condition might be passed on in the family and different reproductive options.
  • Young adults with a facial difference or a known genetic condition. We recommend genetic counseling before age 21 to help with understanding a genetic condition and considering options for future family planning.
  • Any patient or family that chooses to have genetic testing. We explain the pros and cons of genetic testing and explain test results.

Why choose Seattle Children’s Craniofacial Genetics Clinic?

Our team has expertise in both genetics and craniofacial conditions.

Team

Genetic counselors

  • Maria Mills, MS, CGC

    Maria Mills, MS, CGC

  • Lex  Powers, MS, GC

    Lex Powers, MS, GC

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Craniofacial genetics nurse

  • Suzanne Siegel, BSN, RN

    Suzanne Siegel, BSN, RN

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Genetic counselor assistant

  • Fa Kul, MPH

    Fa Kul, MPH

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New information about genetics is being discovered all the time. To give you the most up-to-date information on risk factors and tests, we stay on top of the latest research. We partner with researchers in Craniofacial Medicine and Genetic Medicine at the University of Washington Medical School.

Do I need a referral?

You may make an appointment on your own or ask your doctor to refer you. Call 206-987-2208.

Contact Us

Contact the Craniofacial Center at 206-987-2208 for an appointment, a second opinion or more information.