Epic, Our New Electronic Health Record, Launched October 3
We are excited to launch Epic, our new electronic health record! You may notice us doing things differently, such as using more electronic devices and less paper. As always, your safety is our highest priority and we are here to answer any questions you may have.
If you have an upcoming appointment:
- Make sure to be at the registration desk no later than 15 minutes before your appointment. This may mean that you need to arrive at the clinic location 20–25 minutes before the appointment, so you can complete parking and entrance procedures before registration. This will help us ensure that your visit can begin on time.
- Bring your current medication list so we can check our records carefully and make sure everything is correct.
What is the Aerodigestive Program?
At Seattle Children’s Aerodigestive Program, we treat children, from birth to age 21, who have complex upper airway, breathing and swallowing problems. The word “aerodigestive” combines “aero,” which means “air,” and “digestive.” In this program, we treat airway and digestive tract issues that are closely tied together. These problems can involve a child’s:
- Mouth and throat (pharynx)
- Voice box (larynx)
- Windpipe (trachea)
- Food pipe (esophagus)
We see problems that involve a child’s digestive, respiratory and pulmonary systems. The structures and functions of these systems in the body are all connected. We believe that the best care starts with a connected, interdisciplinary team. “Interdisciplinary” means that when we see patients, we communicate with each other and recommend next steps based on input from all team members. The Aerodigestive Program team is made up of experts in these areas:
- Otolaryngology (ear, nose and throat experts)
- Pulmonology (lung experts)
- Nutrition (registered dietitians)
- Speech and language pathology (experts in evaluating feeding and swallowing)
These specialists might also take part in diagnosing and caring for your child:
The children we see in the Aerodigestive Program have been referred to us because they have several health issues that are linked with each other. In order to solve one problem, the other problems must be treated as well.
These linked health issues happen because the tube-like parts of our body that we use for breathing and swallowing share physical space. There is an opening in the voice box (larynx) between the vocal cords. This opening connects to the windpipe (trachea), which connects to the lungs. This area is known as the body’s airway. Just in front of the larynx is the opening to the food tube (esophagus), which leads to the stomach and intestines. When everything is working well, food and air take different paths:
- Food travels from the mouth to the throat to the esophagus to the stomach.
- Air travels from the mouth to the throat to the larynx to the trachea to the lungs.
Each child we treat has a unique mix of digestive, respiratory and/or pulmonary issues causing them distress. For example, we might see a child who has severe reflux (where food and stomach acid back up into the esophagus) and has recurring pneumonia (a lung infection) as a result of inhaling (breathing in) their reflux. Through talking to you and your child and through diagnostic tests, we might learn that:
- Stomach acid from the severe reflux is causing damage to your child’s swallowing reflexes.
- Swallowing trouble is causing food or stomach content to accidently get into the lungs (aspiration).
- More frequent aspiration is leading to more bouts of pneumonia.
You’ve probably had the experience of food “going down the wrong pipe.” This can happen in children when they have trouble swallowing (called dysphagia). Instead of food staying in the esophagus, some of it takes a detour through the larynx and into the lungs (aspiration). Many of the children we see in the Aerodigestive Program have dysphagia and aspiration, and as well as frequent lung infections from chronic aspiration.
There are many aerodigestive problems other than dysphagia and aspiration that we manage. Some children we see have conditions that develop because they have a narrowing of the airway (subglottic stenosis) and might need reconstructive surgery. Some children are born with subglottic stenosis, and some develop it from having a breathing tube (ventilator) for a long period of time. Other children we see are having trouble with the transition from breathing through a tracheotomy tube to breathing on their own, and we have been asked to investigate the causes.
Because our mission is to treat complex, linked aerodigestive conditions, we don’t have a “typical” patient. Most of our patients have been referred to us by other specialists because of the complex nature of their conditions.
After identifying the problems and how they are connected, we create a care plan that spans your child’s respiratory, digestive and pulmonary systems. The care plan includes the caregivers who are experts in those systems.
How will the Aerodigestive Program meet my needs?
If your child is referred to the Aerodigestive Program, you will first visit our clinic at Seattle Children’s Bellevue Clinic and Surgery Center. A team of experts will ask you and your child questions about their medical history. They will also examine your child, schedule or do necessary tests, and answer questions.
The length of your visit depends on your family’s needs, the number of providers your child needs to see and tests your child may need. Most visits last 1 to 3 hours.
We try to coordinate your child’s clinic appointment so that you see all these providers on the same day:
- Otolaryngology provider
- Pulmonary doctor
- Speech and language pathologist
- Audiologist, if needed
- Gastroenterologist, if needed
These caregivers talk to each other and review each other’s notes throughout your child’s clinic visit. A team member meets with you and your child at the end of the visit and reviews the recommendations and plans from the clinic day. If any of these plans change after our full interdisciplinary review, a team member will contact you about these changes.
Your child may receive some or all of these tests during their Aerodigestive clinic visit:
- Hearing test
- X-ray of neck or chest
- Lung function tests
- For children who are on a ventilator, a check to make sure it is working properly
- Flexible fiber-optic laryngoscopy. We insert a small flexible telescope through the nose to evaluate the throat and voice box. This is brief and is done while your child is awake. Numbing can be provided if requested.
- Fiber-optic endoscopic evaluation of swallowing (FEES). We insert a thin flexible telescope into your child’s nose while they are feeding. This lets us look at their throat while they are swallowing. Numbing can be provided if requested.
- Videofluoroscopic swallowing study (VFSS [PDF]). A VFSS is a test to look at how your child swallows foods and liquids. We make an X-ray “movie” of your child’s mouth and throat while they are drinking and eating.
The results from these tests help the Aerodigestive team create their care plan. The team may need more information. If this is the case, they will assist you with scheduling your child for one or more endoscopies at the main hospital campus in Seattle.
After your Aerodigestive clinic visit, your child may need further testing such as one or more endoscopies. An endoscopy is a test that lets the doctor look inside your child’s body with a small camera through a small opening such as the mouth. Your child will be given general anesthesia or sedation during an endoscopy so they will be comfortable. Our team has many years of experience performing endoscopies on children. We take care to ensure each procedure is safe and as comfortable as possible.
Endoscopies are done at the main hospital campus in Seattle. We coordinate these tests so that they can be done in one visit to the operating room. This means your child can get all tests performed in about 1 to 2 hours. The endoscopies that we perform include:
- Esophagogastroduodenoscopy (EGD). A gastroenterologist uses a flexible scope to look at the esophagus, stomach and upper gastrointestinal (GI) tract. The doctor often obtains samples of the lining of these areas as well. Learn more about this type of endoscopy (PDF).
- Flexible bronchoscopy and bronchoalveolar lavage (BAL). A pulmonologist uses a small flexible scope to look at the movement of the upper and lower airways while your child is lightly sedated and breathing on their own. The doctor also performs a washing of the lungs, which gives them cell samples that they can study.
- Microdirect laryngoscopy and bronchoscopy (MDLB). An otolaryngologist uses a very small, rigid telescope, which is passed through the mouth to get an enlarged view of the voice box and windpipe.
The doctors who perform the endoscopies will meet together as a team with you and your child to give you the results, schedule a follow-up visit in the next 3 to 4 months and discuss next steps. Examples of the types of next steps we might recommended are:
- Sleep studies
- Imaging such as chest CT (computed tomography) scans or head MRI (magnetic resonance imaging) scans
- Repeats of certain tests after treatments have been prescribed to see if a child’s condition has improved
We see how frustrating it is for parents who have a child with a complex aerodigestive condition that requires care by multiple doctors. Our program is not a group of individual doctors focused on individual symptoms. Our goal is to treat the whole child and to improve health problems that are linked to each other. That is why communicating with each other is a priority. It is also important to us to communicate well with you and the physician who referred you to the program.
After all tests and endoscopies have been completed, team members meet together in person, discuss what we have learned and agree on next steps. We believe that collaborating with each other is crucial to providing the best possible treatment for our patients. Once we agree on a diagnosis, we present our findings and recommendations – together as a team – to patients and their families.
For patients’ families, we have an online patient portal set up for direct communication with the team. We are here to answer questions. We want to keep the conversation going.
Who’s on the team?
Aerodigestive Program caregivers have special training not only in their fields, but also in the unique needs of children and adolescents.
- Kaalan Johnson, MD, surgical director, Aerodigestive Program
- John Dahl, MD, PhD, MBA
- Sanjay Parikh, MD
- Eddie Mark, ARNP
Speech and language pathology
- Kim DeMarre, MS, CCC-SLP
- Amy Faherty, MS, CCC-SLP
If you have a referral or would like a second opinion, or for more information about the Aerodigestive Program, call 206-987-6587.
Schedule an appointment with the Aerodigestive Program
- To make an appointment with Seattle Children’s Aerodigestive Program, you need a referral from your primary care doctor or specialist. If you already have a referral, call our scheduler at 206-987-6587 to make an appointment.
- See our Insurance Services page for answers to your questions about insurance coverage.
Make a referral
If you are a referring physician and would like to talk to a member of the Aerodigestive team about a patient, call the Otolaryngology nurse line at 206-987-2105. Even if you are unsure about whether your patient should be seen by us, we want to help you with any questions you might have.
What should I bring to my child’s appointment?
- Books, toys and snacks for your child
- Your child’s clinic notes or reports about operations done outside of Seattle Children’s
- Your child’s imaging or study results done outside of Seattle Children’s, like X-rays, swallow studies, sleep studies, growth charts and reports of blood work or other tests
- Your child’s medicines and medical equipment
- Forms that providers need to sign, like school forms
- 3-day food diary, if your child is eating by mouth
- Cup or bottle your child prefers