Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Masking and Visitation Changes: Due to high rates of respiratory illnesses in our community, we’ve made changes to our masking and visitation guidelines .

Current Research Studies

Spastic Paraplegia ? Centers of Excellence Research Network Natural History Study Pilot

SP-CERN

Phase: N/A

What is the goal of the study?

In this study, we want to find out more about the signs and symptoms of HSP and PLS in its early stages along with its progression. We hope the information from this study will help facilitate early diagnosis, enable counseling and anticipatory guidance to families and help develop a treatment for HSP and PLS in the future. We aim to support critical research infrastructure for collaborative high-quality research on HSP and PLS in North America and beyond.

Who can participate in the study?

Have a clinical diagnosis of hereditary spastic paraplegia or primary lateral sclerosis and/or have genetic mutation of the HSP related genes and/or a relative of a person with such a diagnosis.

Study Team:

PI (Study Doctor): Dararat Mingbunjerdsuk
Study Team Member: Jacqueline Lee-Eng, [email protected]

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.