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Current Research Studies

SC-C127, NAPAAC Registry Study of Bone Marrow Failure and Myelodysplastic Syndromes

SC-C127, NAPAAC Registry for BM Failure & MDS

Condition: CBDC - Hematology

What is the goal of the study?

This is a protocol aimed to review outcomes of patients diagnosed with Pediatric Bone Marrow Failure (BMF) and Pediatric Myelodysplastic Syndrome (MDS) treated at North American Pediatric Aplastic Anemia Consortium (NAPAAC) centers. Chart review of patients who have been diagnosed at NAPAAC centers will be performed with the aim to study the clinical presentation and treatment outcomes of these patients by group, disease type, stage of disease, age, and therapy type.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Amy Geddis
Study Team Member: HemOnc CRAs, HemOncCRAs@seattlechildrens.org

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.