Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Masking and Visitation Changes: Due to high rates of respiratory illnesses in our community, we’ve made changes to our masking and visitation guidelines .

Current Research Studies

SC-C127, NAPAAC Registry Study of Bone Marrow Failure and Myelodysplastic Syndromes

SC-C127, NAPAAC Registry for BM Failure & MDS

Clinicaltrials.gov ID: NCT33333333

What is the goal of the study?

This is a protocol aimed to review outcomes of patients diagnosed with Pediatric Bone Marrow Failure (BMF) and Pediatric Myelodysplastic Syndrome (MDS) treated at North American Pediatric Aplastic Anemia Consortium (NAPAAC) centers. Chart review of patients who have been diagnosed at NAPAAC centers will be performed with the aim to study the clinical presentation and treatment outcomes of these patients by group, disease type, stage of disease, age, and therapy type.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Amy Geddis
Study Team Member: HemOnc CRAs, [email protected]