Current Research Studies

Multicenter Cure SMA Clinical Data Registry

Cure SMA Registry

What is the goal of the study?

A clinical data registry (CDR) for individuals with spinal muscular atrophy has been developed to collect clinician entered data via electronic data transfer from the electronic health record from multiple centers caring for patients with SMA. This clinical data registry will be for the collection and storage of data that can be used for a variety of activities including research and quality improvement

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team: