Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Current Research Studies

Multicenter Cure SMA Clinical Data Registry

Cure SMA Registry

What is the goal of the study?

A clinical data registry (CDR) for individuals with spinal muscular atrophy has been developed to collect clinician entered data via electronic data transfer from the electronic health record from multiple centers caring for patients with SMA. This clinical data registry will be for the collection and storage of data that can be used for a variety of activities including research and quality improvement

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Seth Perlman
Study Team Member: Mikaela Gatterman, Mikaela.Gatterman@seattlechildrens.org

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.