Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Masking and Visitation Changes: Due to high rates of respiratory illnesses in our community, we’ve made changes to our masking and visitation guidelines .

Current Research Studies

Modeling Mortality in Duchenne Muscular Dystrophy Cardiomyopathy: Identification of Surrogate Outcome Measures for DMD Drug Trials

Machine Learning in DMD

Phase: N/A

What is the goal of the study?

To create a comprehensive cohort of DMD/BMD/MDC patients and model the progression of CM. To determine cardiovascular measures that are associated with CM mortality or rapid progression using novel, data-driven, personalized machine learning models.

Who can participate in the study?

Clinical phenotype of Duchenne muscular dystrophy (DMD) or Becker muscular dystrophy (BMD)

Study Team:

PI (Study Doctor): Brian Soriano
Study Team Member: Angela Mills, [email protected]

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.