Current Research Studies

FETAL EBSTEIN ANOMALY AND TRICUSPID VALVE DYSPLASIA (FEAT) REGISTRY

FEAT Registry

Phase: Registry
Clinicaltrials.gov ID: NCT05225311

What is the goal of the study?

This study is a multi-center, prospective registry of fetuses diagnosed with EA/TVD. Aim 1. To evaluate pregnancy course, perinatal and neonatal management among fetuses diagnosed with EA/TVD and to determine factors and strategies associated with survival to live-birth and survival to neonatal hospital discharge. Aim 2. To explore the impact of fetal NSAIDs on circulatory physiology, survival, and neurodevelopmental outcome. Aim 3. To understand long-term outcomes of fetuses diagnosed with EA/TVD throughout the lifespan, including survival, re-intervention, comorbidities, quality of life, and neurodevelopmental outcome.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Bhawna Arya
Study Team Member: Angela Mills, [email protected]