Research and Scholarship
Our bioethics research and scholarship draws on the work of many disciplines, including philosophy, law, and social and behavioral sciences. Faculty members in the center have diverse clinical backgrounds (i.e., anesthesia, critical care, emergency medicine, general pediatrics, genetics, neonatology, nephrology, palliative care and pulmonary medicine).
Our faculty, fellows and staff advance projects in the following five domains:
Medical Decision-Making and Communication
- Developing a Communication Tool for Parents of Children With Severe Neurological Impairment: Connecting Clinicians and Parents on a Deeper Level</li>
- Integrating clinical genomic sequencing in primary care: Improving informed consent and communication and assessing impact on the health system
- Talking with parents about vaccines: Getting off to the right start
- Provider–parent communication in pediatric anesthesiology: Improving the informed consent process
Quality of Life and Family Experience
- Resilience among adolescents and young adults with cancer: Developing patient-centered interventions to improve outcomes
- Organ transplants for children with profound intellectual disabilities: Examining the ethical considerations in policy decisions
Biomedical Research Ethics
- Attitudes about the ethics of research on medical practices: Understanding patient views about informed consent for research on medical practices
- Research participation in the neonatal intensive care unit: Examining how parents decide whether to enroll their infant in a research study
Research Policy and Health Policy
- Enhancing research protections in Native American communities: Developing strategies for tribal oversight of genetics and data sharing
- Equity in health and healthcare technologies: Building community capacity to engage in healthcare decisions, research and policy
