Treuman Katz Center for Pediatric Bioethics
Center Highlights
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16th Annual Bioethics Conference
We have deferred our conference to next year. Please join us July 23–24 in 2021 for our conference, “Pushing the Limits: Children, Athletics and Ethics.”
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Special Supplement: Defining Cases in Pediatric Bioethics
A special supplement published in Pediatrics features manuscripts from the 15th Annual Pediatric Bioethics Conference: “Defining Moments in Pediatric Bioethics: Future Insights From Past Controversies.”
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Dr. Jori Bogetz is Connecting Clinicians and Parents on a Deeper Level
She is focusing on enhancing communication and building clinician-family relationships to improve care for children with severe neurological impairment.
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Stephanie Kraft Seeks to Improve Informed Consent Process
She is studying how best to offer genomic sequencing to medically underserved primary care patients with a family history of breast or colon cancer.
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Dr. Kate Gentry Focuses on Communication Between Anesthesiologists and Parents
She is working to improve the informed consent process around anesthesia information, especially for families who do not speak English as a first language.
Key Partnerships
Partnerships are an essential part of the Treuman Katz Center’s mission. Our researchers collaborate with colleagues across the nation and around the world in pursuit of answers to complex bioethics questions.
Our partners include the Center for Clinical and Translational Research at Seattle Children’s Research Institute and the Department of Bioethics and Humanities and the Institute of Translational Health Sciences at the University of Washington.
Bioethics Consultations
Our bioethicists provide practical guidance to families, providers, researchers and policymakers about patient care, public health and research issues. Our consultation service is available to colleagues throughout Seattle Children’s and the University of Washington, and we offer informal advice to people at outside institutions. Learn more about our services.
Publications
Ramirez FD, Bogetz JF, Kufeld M, Yee LM. Professional Bereavement Photography in the Setting of Perinatal Loss: A Qualitative Analysis. Global Pediatric Health. 2019 Jun 13;6:2333794X19854941.
Bogetz JF. Behind This Face Shield, I See You. Journal of Palliative Medicine. 2020 Jun;23(6):870.
Laventhal N, Basak R, Dell ML, Diekema D, Elster N, Geis G, Mercurio M, Opel D, Shalowitz D, Statter M, Macauley R.The Ethics of Creating a Resource Allocation Strategy During the COVID-19 Pandemic.Pediatrics. 2020 Jul;146(1):e20201243.
Shah SK, Miller FG, Darton TC, Duenas D, Emerson C, Lynch HF, Jamrozik E, Jecker NS, Kamuya D, Kapulu M, Kimmelman J, MacKay D, Memoli MJ, Murphy SC, Palacios R, Richie TL, Roestenberg M, Saxena A, Saylor K, Selgelid MJ, Vaswani V, Rid A. Unnecessary hesitancy on human vaccine tests-Response. Science. 2020 Jul 10;369(6500):151.
Shah SK, Miller FG, Darton TC, Duenas D, Emerson C, Lynch HF, Jamrozik E, Jecker NS, Kamuya D, Kapulu M, Kimmelman J, MacKay D, Memoli MJ, Murphy SC, Palacios R, Richie TL, Roestenberg M, Saxena A, Saylor K, Selgelid MJ, Vaswani V, Rid A. Ethics of controlled human infection to address COVID-19. Science. 2020 May 22;368(6493):832-834.
Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, Lee SS .Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution. Genetic Medicine. 2020 Jun;22(6):1094-1101.
MacDuffie KE, Shen MD, Dager SR, Styner MA, Kim SH, Paterson S, Pandey J, St John T, Elison JT, Wolff JJ, Swanson MR, Botteron KN, Zwaigenbaum L, Piven J, Estes AM. Sleep Onset Problems and Subcortical Development in Infants Later Diagnosed With Autism Spectrum Disorder. American Journal of Psychiatry. 2020 Jun 1;177(6):518-525.
Statter MB, Noritz G; COMMITTEE ON BIOETHICS (Opel DJ, Diekema DS), COUNCIL ON CHILDREN WITH DISABILITIES. Children With Intellectual and Developmental Disabilities as Organ Transplantation Recipients. Pediatrics. 2020 May;145(5):e20200625.
Kalantar-Zadeh K, Wightman A, Liao S Ensuring Choice for People with Kidney Failure - Dialysis, Supportive Care, and Hope.. New England Journal Medicine. 2020 Jul 9;383(2):99.
Goldberg AM, Bobrowski A, Wightman A. Crowdsourcing in pediatric transplant studies-An opportunity for reflection on research ethics. Pediatric Transplant. 2019 Dec;23(8):e13603.
Grayson S, Doerr M, Yu JH. Developing pathways for community-led research with big data: a content analysis of stakeholder interviews. Health Research Policy Systems. 2020 Jul 8;18(1):76.
Wightman A, Lewis H, Diekema D (Eds.). Defining Moments in Pediatric Bioethics: Future Insights From Past Controversies. Pediatrics. 2020 Aug:146(Suppl 1).
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Our Experts in the Media
- Helping parents build the skills needed to navigate a child’s cancer – 11/1/19 – The Seattle Times
A study conducted by Dr. Abby Rosenberg, director of palliative care and resilience research at Seattle Children’s Research Institute, and colleagues showed parents of children with cancer derived strength and resilience from one-on-one support sessions with a novel intervention called Promoting Resilience in Stress Management for Parents (PRISM-P). -
Intervention helps parents cope, find ‘the good in the bad’ after child’s cancer diagnosis – 10.2.19 – HemOnc Today
A study conducted by Dr. Abby Rosenberg, director of palliative care and resilience research at Seattle Children’s Research Institute, and colleagues showed parents of children with cancer derived strength and resilience from one-on-one support sessions with a novel intervention called Promoting Resilience in Stress Management for Parents (PRISM-P). Skills imparted through PRISM-P are rooted in previous studies on coping with adversity that Rosenberg conducted with health psychologist Joyce Yi-Frazier. Rosenberg discusses the origins of PRISM-P, its impact on parents and the potential benefit of such coping skills for the entire family. - Hiking as a family benefits all ages – 9.24.19 – Charlotte Parent
The first step toward happy hiking with tots is making sure they’re safe and comfortable. “When planning a hike, a helpful general rule to remember is that a child can hike about as many miles as their age in years,” says avid hiker and wilderness educator Dr. Douglas Diekema, an emergency medicine physician at Seattle Children’s. Young children are more at risk for heat and cold injury than adults, so parents should bring an extra layer for children to wear and remember that babies and toddlers being carried stay cooler, even after you’re warmed up, he says. - Study helps parents build resilience to navigate child’s cancer – 9.18.19 – Medical Xpress
In a study published in JAMA Network Open, Seattle Children’s researchers found that one-on-one sessions teaching skills through a tool called Promoting Resilience in Stress Management for Parents (PRISM-P) improved resilience and benefit finding among parents of children with cancer. “This tells me we are doing what is perhaps most important for parents: helping them to know they can come back again tomorrow and that they can find some good in the bad. These two things will help both them and their families,” said Dr. Abby Rosenberg, a researcher at Seattle Children’s Research Institute and lead author of the study.
