Treuman Katz Center for Pediatric Bioethics
Our 2018 conference, When Cultures Clash: Navigating Ethical Disagreements Related to Diversity, took place July 20–21. Videos are now available.
Congratulations to Dr. Douglas Diekema on his election as one of nine members-at-large to the Board of Directors for the American Society for Bioethics and Humanities (ASBH). This three-year position starts October 19, 2018. “I am excited to be joining the board of the ASBH and have the opportunity to shape the future of our national organization,” Diekema said. ASBH is an educational organization for professionals engaged in all endeavors related to clinical and academic bioethics and the health-related humanities.
She is studying how best to offer genomic sequencing to medically underserved primary care patients with a family history of breast or colon cancer.
She is working to improve the informed consent process around anesthesia information, especially for families who do not speak English as a first language
Partnerships are an essential part of the Treuman Katz Center’s mission. Our researchers collaborate with colleagues across the nation and around the world in pursuit of answers to complex bioethics questions.
Our partners include the Center for Clinical and Translational Research at Seattle Children’s Research Institute and the Department of Bioethics and Humanitiesand the Institute of Translational Health Sciences at the University of Washington.
Our bioethicists provide practical guidance to families, providers, researchers and policymakers about patient care, public health and research issues. Our consultation service is available to colleagues throughout Seattle Children’s and the University of Washington, and we offer informal advice to people at outside institutions. Learn more about our services.
Mullin J, Bogetz J. Point: Moral distress can indicate inappropriate care at end-of-Life. Psychooncology. 2018 Jun;27(6):1490-1492.
Bogetz JF, Hauer J. Certainty of Decisions: A Process-Based Model for Decision Making for Children With Severe Neurological Impairment. Clinical Pediatrics. 2018 Sep;57(10):1227-1231.
Gentry KR, Arnup SJ, Disma N, Dorris L, de Graaff JC, Hunyady A, Morton NS, Withington DE, McCann ME, Davidson AJ, Lynn AM; GAS Trial Consortium. Enrollment challenges in multicenter, international studies: The example of the GAS trial. Paediatric Anaesthesia. 2018 Jan;29(1):51-58.
Lau N, Bona K, Steineck A, Rosenberg AR. What we did not learn from an exploratory analysis of economic hardship in newly diagnosed adolescents and young adults with cancer. Pediatric Blood & Cancer. 2018 Dec;65(12):e27411.
Bryan MA, Hofstetter AM, deHart MP, Zhou C, Opel DJ. Accuracy of Provider-Documented Child Immunization Status at Hospital Presentation for Acute Respiratory Illness. Hospital Pediatrics. 2018 Dec;8(12):769-777.
Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, Biswas S, Bowling KM, Chung WK, Clayton EW, Conlin LK, Cooper GM, Dulik MC, Garraway LA, Ghazani AA, Green RC, Hiatt SM, Jamal SM, Jarvik GP, Goddard KAB, Wilfond BS; members of the CSER Actionability and Return of Results Working Group. Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience. Molecular Genetics & Genomic Medicine. 2018 Nov;6(6):898-909.
Figueroa Gray M, Ludman EJ, Beatty T, Rosenberg AR, Wernli KJ. Balancing hope and risk among adolescent and young adult cancer patients with late-stage cancer: A qualitative interview study. Journal of Adolescent and Young Adult Oncology. 2018 Dec;7(6):673-680.
Jordan M, Keefer PM, Lee YA, Meade K, Snaman JM, Wolfe J, Kamal A, Rosenberg A. Top ten tips palliative care clinicians should know about caring for children. Journal of Palliative Medicine. 2018 Dec;21(12):1783-1789.
Rosenberg AR, Bradford MC, Barton KS, McCauley E, Curtis JR, Wolfe J, Baker KS, Yi-Frazier JP. Hope and benefit finding: Results from the PRISM randomized controlled trial. Pediatric Blood & Cancer. 2019 Jan;66(1):e27485.
Wallis KE, Weiss EM. Distinguishing Primary and Secondary Early Intervention Programs: Implications for Families, Clinicians, and Policymakers. The American Journal of Bioethics. 2018 Nov;18(11):65-67.
Mann PC, Weiss EM, Seltzer RR, Dodge RAB, Boss RD, Lantos JD. Child Abuse, Incarceration, and Decisions About Life-sustaining Treatment. Pediatrics. 2018 Dec;142(6). pii: e20180430.
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Our Experts in the Media
Vaccine skeptics fight Washington bill to end personal exemptions – 1.30.19 –The Stranger
In the midst of a measles outbreak, Washington legislators introduced a bill to end personal exemptions from vaccines. According to Dr. Douglas Diekema, a physician in the ED at Seattle Children’s, there is no credible evidence an allergic reaction to any vaccine causes autism. “Researchers from multiple countries have published studies containing tens of thousands, if not hundreds of thousands, of children, and there is nothing there,” said Diekema.
Cambia Health Foundation announces 12 new Sojourns® Scholars – Morningstar
The Cambia Health Foundation has announced the selection of 12 new emerging palliative care leaders for its Sojourns® Scholar Leadership Program. Each Sojourns Scholar receives a two-year, $180,000 grant to conduct an innovative and impactful project tied to a leadership development plan that positions the scholar for growth as a national leader in the field of palliative care. Dr. Abby Rosenberg of Seattle Children’s and UW received the grant for her project “Promoting Resilience in Adolescents and Young Adults with Serious Illness.”
Officials in anti-vaccination ‘hotspot’ near Portland declare an emergency over measles outbreak – The Washington Post
A quickly escalating measles outbreak around Portland, Ore., has led health officials in nearby Clark County, Wash., to declare a public health emergency. The outbreak makes concrete the fear of pediatric epidemiologists that a citadel of the movement against compulsory vaccination could be susceptible to the rapid spread of a potentially deadly disease. “It’s alarming,” said Dr. Douglas Opel, a pediatrician at Seattle Children’s. “Any time we have an outbreak of a disease that we have a safe and effective vaccine against, it should raise a red flag.”
‘Spirits won’t rest’: DNA links ancient bones to living aboriginal Australians – The New York Times
Museums around the world hold the remains of Aboriginal Australians, many of them stolen. Now geneticists may have found a way to return the bones to their homes. In a study published in Science Advances, a team of geneticists showed they could use fragments of DNA retrieved from bone or hair to determine where in Australia the remains originated. Dr. Nanibaa’ Garrison, a bioethicist at Seattle Children’s and the UW, who was not involved in the new study, said that the research could eventually serve as a model for collaborations between scientists and Native American tribes in the U.S., who have similar concerns about scientific exploitation. “This work is great as a proof of concept,” said Garrison.
Compatible with life? – Stanford Medicine
Dr. Benjamin Wilfond, a bioethicist and pediatric pulmonologist at Seattle Children’s Hospital, is a longtime advocate for broader interventions for children with trisomy 13 and 18. Recently, one of Wilfond’s trisomy 18 patients in Seattle had chronic respiratory failure and a heart defect. She received a tracheostomy and spent several months on a ventilator. Eventually, she could breathe on her own and was healthy enough to receive surgery. She’s now 3.
Seeking greater inclusivity in genomics research – 11.1.18 – Forbes
There have been a number of recent efforts, many led by indigenous scientists around the world, to draw attention and offer solutions to issues with research among under-represented communities. Dr. Nanibaa’ Garrison, a bioethicist at Seattle Children's Research Institute and a member of the Navajo Nation, advocates for “increasing the training and capacity of Indigenous people so that they can bring a much-needed perspective to the interpretations of the results,” she said.