Pediatric Bioethics Conference

2013 Pediatric Bioethics Conference

The Treuman Katz Center for Pediatric Bioethics hosted its ninth annual pediatric bioethics conference on July 19 and 20, 2013, in Seattle. The conference featured nationally recognized speakers in bioethics, and drew over 220 participants from across the nation and around the world.

Videos are posted below, as are PDFs of speaker biographies and presentations.

2013 Bioethics Conference

Cases That Keep Us Awake at Night: Challenges in Pediatric Bioethics

There are cases that test our moral values, raising complicated ethical issues in our day-to-day care of individual patients. Frequently, as they search for the proper course of action, clinicians and families seek advice from ethics committees or consultants. Yet, even when these situations are resolved, they may leave us feeling unsettled and uncertain. Did we do the right thing? Did we act in the best interests of all concerned? Could we have done more?

  • Should a teenager be allowed to refuse a lifesaving blood transfusion on religious grounds?
  • Should an organ transplant be performed over a family's objections?
  • Should healthcare professionals withdraw medical interventions against the wishes of a family?


Friday, July 19, 2013

The Hermit, the Mongol, the Swimmer, Bucky and the Dwarfs: Cases That Changed Me 
Norman Fost, MD, MPH

Siblings and Bone Marrow Donation: Can a Parent Protect the Interests of Both the Donor and the Recipient? 
Douglas Opel, MD, MPH
Paula Goodman-Crews, MSW, LCSW
Lainie Friedman Ross, MD, PhD

A Conversation About Challenging Cases in Clinical Ethics 
Douglas Diekema, MD, MPH, Moderator
Norman Fost, Kellie Lang, John Lantos, Lainie Friedman Ross, Paula Goodman-Crews, D. Micah Hester, Sara Rosenthal

An Adolescent with Leukemia Refuses a Blood Transfusion 
David Woodrum, MD
D. Micah Hester, PhD
Marlena Dietzway, JD

When the Results of Genetic Screening Affect 50 Not-So-Cooperative Individuals 
Sara Rosenthal, PhD
Kellie Lang, JD, RN
Holly Tabor, PhD

Reflections of an Ethics Consultant: The Outsider/Insider Dilemma 
Denise Dudzinski, PhD, MTS

Saturday, July 20, 2013

On the Tragic Nature of Ethics Consultation 
Douglas Diekema, MD, MPH

Should Dialysis Be Compelled for a Child with Chronic Renal Failure? 
Aaron Wightman, MD
Paula Goodman-Crews, MSW, LCSW
John Lantos, MD

Breakout Sessions: Presentation and Discussion of Submitted Cases  

  • Decision-Making in the NICU 
    Moderator: Susan Albersheim, MD, FRCPC, PhD
    • The Amish and Decision-Making in the NICU: Whose Justice? Which Rationality? 
      Ryan Antiel, MD, MA
    • Authenticity of Decisions and Capacity to Parent: Do These Tip the Balance of Parental Autonomy? 
      Renee Boss, MD, MHS
  • Roles and Boundaries of Medical Professionals in the Care of Pediatric Patients 
    Moderator: Lainie Friedman Ross, MD, PhD
    • Whose Child Is It Anyway? 
      Richard Boyte, MD, MA
    • Life-and-Death Decisions for, with and by Adolescent Cancer Patients: A Comparison of Two Cases Involving Child Protective Services 
      Jessica Moore, DHCE
    • Cases That Haunt Us: A Ten-Year-Old Patient's Crime 
      Diane Treadwell-Deering, MD 
      Courtenay Bruce, JD, MA
  • The Limits of Parental Decision-Making in the PICU 
    Moderators: Jonna Derbenwick Clark, MD, MA and Mithya Lewis-Newby, MD, MPH
    • Futile Care for an Inoperable Pediatric Brain Tumor 
      Anthony Cherin, MD
    • The Experience of a Pediatric Hospital with the Texas Advance Directives Act: Two Case Studies 
      Amy Howells, MSN, CPNP-AC
    • When to Withdraw 
      Brooke Jardine, MD, MPH

What We Talk About When We Talk About Ethics 
John Lantos, MD