The Patient Reported Outcomes (PRO) Program Study
PRO Study
What is the goal of the study?
The goal of this study is to create a databank (PRO research database) of patient-centered outcomes data (i.e., survey data from patients and families) collected through the Patient Reported Outcomes Program(PRO) at Seattle Children's Hospital. The PRO is a program funded through the Center for Quality and Patient Safety as a quality improvement (QI) initiative to incorporate patient-centered outcomes in the routine evaluation of QI interventions that are conducted at Seattle Children's. The PRO research database will provide researchers with patient-centered outcomes data relevant to their area of study. This may include survey data related to: * Patient and/or legal guardian perceptions of the quality of care they received * Patient and/or legal guardian perceptions of certain tests, treatments, or therapies * Patient and/or legal guardian perceptions of the impact of certain treatments or therapies on their symptoms or quality of life * Patient and/or legal guardian demographic information
Who can participate in the study?
Children: * Ages 0-17 years old (patient identifiers) * Ages 8-17 years old (survey responses) Adults: > 18 years legal guardians or patients (patient identifiers if the participating adult is the patient, otherwise survey responses only)