The Nephrotic Syndrome Study Network (NEPTUNE)
What is the goal of the study?
Participants will be enrolled at 15 academic clinical centers in the United States and Canada. The sampling frame is a consecutive series of all eligible and consenting patients undergoing diagnostic renal biopsy for any glomerular disease with the exception of renal disease due to systemic lupus erythematosus (SLE), diabetes mellitus or multiple myeloma. After an initial pre-screening, participants will undergo a screening/eligibility visit, baseline visit, biopsy visit, and subsequently four month-interval follow-up visits during year one and thereafter, six month-interval follow-up visits after biopsy. Each participant will experience a maximum of 12-16 study visits during the initial funding period of five years. Procedures to be performed during study visits include diagnostic baseline kidney biopsy, laboratory studies, blood and urine collection for biorepository, limited clinical examination, and administration of questionnaires.
Who can participate in the study?
Please contact the study team listed below to learn more.