Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Masking and Visitation Changes: Due to high rates of respiratory illnesses in our community, we’ve made changes to our masking and visitation guidelines .

Current Research Studies

The Kabuki Syndrome Outcome measures and biomarker Consortium (KSOC) Study

KSOC

Phase: I/II
Clinicaltrials.gov ID: NCT33333333

What is the goal of the study?

This study aims to collect neurodevelopmental data on a small group of individuals with Kabuki syndrome and pair that data with biomarkers in preparation for a potential future clinical trial.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Margaret Adam
Study Team Member: Katherine Grubb, [email protected]