Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Masking and Visitation Changes: Due to high rates of respiratory illnesses in our community, we’ve made changes to our masking and visitation guidelines .

Current Research Studies

Severe Combined Immune Deficiency: Prospective and Longitudinal Study of Genotypes, Management and Outcomes

A Study of SCID Disorders 6907

Clinicaltrials.gov ID: NCT33333333

What is the goal of the study?

In this prospective and longitudinal natural history study, the aim is to identify variables that affect long-term outcomes following potentially life-saving Definitive Therapy (DT), which includes either 1) allogeneic hematopoietic cell transplant (HCT), or 2) autologous gene therapy (GT). There are three key periods of time for patients receiving therapy for SCID: 1) the pre-DT period, 2) the early post- DT period, and 3) the late post-DT period when long-term side effects may become apparent.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Karin Chen
Study Team Member: Tina Nguyen, [email protected]