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Current Research Studies

PWS-Clinical Investigation Collaborative (PWS-CLIC) STUDYTRAX Clinical Database

PWS-CLIC database

Condition: Endocrinology

What is the goal of the study?

The primary objective of the study is to improve the quality of clinical research and medical care for people with Prader-Willi syndrome (PWS) across the lifespan through collaborative investigation and research to support evidence-based care. This objective will be accomplished by establishing a central repository for the consistent collection of de-identified data from participants who receive medical care at PWS-Clinical Investigation Collaborative (PWS-CLIC) member sites. This study will expand the shared evidence base and support learning from every patient.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Parisa Salehi
Study Team Member: ECR Endocrine Research, endocrineresearch@seattlechildrens.org

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.