Current Research Studies

PWS-Clinical Investigation Collaborative (PWS-CLIC) STUDYTRAX Clinical Database

PWS-CLIC database

What is the goal of the study?

The primary objective of the study is to improve the quality of clinical research and medical care for people with Prader-Willi syndrome (PWS) across the lifespan through collaborative investigation and research to support evidence-based care. This objective will be accomplished by establishing a central repository for the consistent collection of de-identified data from participants who receive medical care at PWS-Clinical Investigation Collaborative (PWS-CLIC) member sites. This study will expand the shared evidence base and support learning from every patient.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team: