Observational Study for Pediatric Rheumatic Diseases: The CARRA Registry
CARRA_Registry
What is the goal of the study?
The Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry is an international registry of children and young adults with pediatric-onset rheumatic conditions such as juvenile idiopathic arthritis (JIA). The CARRA Registry is generating valuable data on the epidemiology, disease outcomes and medication safety among children with diverse pediatric rheumatologist diseases. The Registry also intends to follow each participant for at least 10 years to help understand disease outcomes and how they may change over time. Some participants are also eligible for participation in sub-studies, which address more specific questions, and for biospecimen collection, to better understand the biology of these diseases. The CARRA Registry aims to make it possible for all affected children in North America to have the opportunity to participate in meaningful and high-quality clinical and translational research.
Who can participate in the study?
This study is a good fit for children and families who are interested in participating in research and learning more about their disease. Please ask your pediatric rheumatologist for more details about eligibility.