Current Research Studies

International Disorders of Sexual Development and Congenital Adrenal Hyperplasia Registries

I-DSD and I-CAH Registries

What is the goal of the study?

The I-DSD/I-CAH Registries are used by a group of clinicians and scientists who are involved in performing research as well as delivering clinical care in the field of differences of sex development (DSD) and Congenital Adrenal Hyperplasia (CAH). There is a large amount of variation in how children and adults with these conditions are cared for across the world. In addition, there are enormous gaps in the knowledge and etiology of these conditions and the long-term outcome in adults with these conditions. Both registries aim to improve understanding and clinical care of patients with these conditions.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team: