Current Research Studies

Inspiring New Science in Guiding Healthcare in Turner Syndrome (INSIGHTS) Registry

INSIGHTS

Condition(s): Other

What is the goal of the study?

The overarching aim of this study is to establish a national, multicenter, prospective, longitudinal clinical data registry to improve clinical outcomes in individuals with Turner Syndrome (TS). This project will build a collaborative network of centers with a sustainable, unified, and centralized data repository comprised of a large nationally representative, diverse cohort of patients with TS.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Patricia Fechner
Study Team Member: ECR Endocrine Research, endocrineresearch@seattlechildrens.org

Seattle Children’s complies with applicable federal and other civil rights laws and does not discriminate, exclude people or treat them differently based on race, color, religion (creed), sex, gender identity or expression, sexual orientation, national origin (ancestry), age, disability, or any other status protected by applicable federal, state or local law. Financial assistance for medically necessary services is based on family income and hospital resources and is provided to children under age 21 whose primary residence is in Washington, Alaska, Montana or Idaho.