Inspiring New Science in Guiding Healthcare in Turner Syndrome (INSIGHTS) Registry

What is the goal of the study?

The overarching aim of this study is to establish a national, multicenter, prospective, longitudinal clinical data registry to improve clinical outcomes in individuals with Turner Syndrome (TS). This project will build a collaborative network of centers with a sustainable, unified, and centralized data repository comprised of a large nationally representative, diverse cohort of patients with TS.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

• PI (Study Doctor): Patricia Fechner
• Study Team Member: ECR Endocrine Research, [email protected]