Current Research Studies

Communication and Research Enrollment (CARE) in Pediatric Oncology

SC-N190 CARE in Pediatric Oncology

  • Condition(s): Unknown Sites, Other Urinary, Lung, Pancreas, Other Respiratory and Intrathoracic Organs, Leukemia, other, Other Hematopoietic, Colon, Esophagus, Bones and Joints, Cervix, Prostate, Soft Tissue, Larynx, Other Digestive Organ, Kaposi's Sarcoma, Non-Hodgkin's Lymphoma, Lip, Oral Cavity and Pharynx, Kidney, Thyroid, Ovary, Non-malignant Disease, Other Male Genital, Other Female Genital, Hodgkin's Lymphoma, Rectum, Melanoma, Skin, Liver, Breast, Myeloid and Monocytic Leukemia, Lymphoid Leukemia, Anus, Eye and Orbit, Urinary Bladder, Ill-Defined Sites, Mycosis Fungoides, Stomach, Multiple Myeloma, Corpus Uteri, Other Endocrine System, Small Intestine, Brain and Nervous System, Other Skin
  • Phase: N/A
  • Clinicaltrials.gov ID: NA

What is the goal of the study?

Identify patient- and situational- factors associated with enrollment status on pediatric oncology biobanking studies. Explore the comprehension of biobanking enrollment status and understanding of the goals of biobanking (i.e., quality of informed consent), as well as perspectives on and communication preferences about biobanking research of young adults (YAs) with cancer and parents of children with cancer. Develop and refine a multiple item survey to assesses the above domains of interest. Collect and report information about parent and YA patient experiences of and preferences for communication about cancer biobanking research.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team: