ARCHIVE (A Registry for Children with Vasculitis)
ARCHIVE
What is the goal of the study?
The purpose of this project is to develop a safe, private computerized database of health information [the ARCHIVE (A Registry for Children with Vasculitis: e-entry)] of Canadian and American children with chronic vasculitis, which will allow researchers to answer questions about how similar or different children with this disease are compared to adults with the same disease, how long it takes doctors to recognize these diseases in children and what are the treatments more commonly used. During the first 2 years, the study will establish a multicenter database of children with vasculitis initially within the Childhood Arthritis and Rheumatism Research Alliance (CARRA). It is hoped that over time the ARCHIVE will expand to include health information from children with vasculitis living around the world, and include information about how well children respond to treatments and what happens to the disease (gets better or worse) over time.
Who can participate in the study?
Please contact the study team listed below to learn more.