Due to a measles case in the community, please call before coming to Seattle Children’s if you or your child has potential measles symptoms.

Masking and Visitation Changes: Due to high rates of respiratory illnesses in our community, we’ve made changes to our masking and visitation guidelines .

Current Research Studies

An Open-Label, Expanded Access Protocol for Boys with Duchenne Muscular Dystrophy who Have Completed the Long-Term Extension (VBP15-LTE) or VBP15-004 Studies

Vamorolone EAP VBP15-EAP

Phase: IV
Clinicaltrials.gov ID: NCT03863119

What is the goal of the study?

This protocol is to provide continued access to Vamorolone for subjects in the United States who have completed the VBP15-LTE or VBP15-004 protocols (and are thereby ineligible to enroll in another trial of Vamorolone therapy), during the time that VBP15-004 is ongoing, and while a new drug application for Vamorolone is under preparation and review.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team:

PI (Study Doctor): Seth Perlman
Study Team Member: Josephine Cooke, [email protected]