Current Research Studies

A feasibility study of family interviews after early death in pediatric cancer

SC-N172: Early death in pediatric cancer

  • Condition(s): Brain and Nervous System, Other Skin, Rectum, Leukemia, other, Cervix, Bones and Joints, Prostate, Multiple Myeloma, Small Intestine, Stomach, Eye and Orbit, Other Male Genital, Pancreas, Kaposi's Sarcoma, Thyroid, Larynx, Kidney, Other Respiratory and Intrathoracic Organs, Ovary, Other Female Genital, Corpus Uteri, Other Endocrine System, Esophagus, Non-Hodgkin's Lymphoma, Unknown Sites, Melanoma, Skin, Colon, Other Urinary, Breast, Ill-Defined Sites, Other Digestive Organ, Lip, Oral Cavity and Pharynx, Hodgkin's Lymphoma, Liver, Lymphoid Leukemia, Mycosis Fungoides, Lung, Urinary Bladder, Myeloid and Monocytic Leukemia, Soft Tissue, Anus
  • Phase: N/A

What is the goal of the study?

This is a prospective mixed methods study of families whose child experienced pediatric cancer early death. Families will complete an interview with a study team member, followed by an interview with a psychologist and also complete a survey to determine psychological impact (PTSD Symptom Scale ? Self-Reported), socioeconomic factors, as well as the familial hardship survey. The patient?s primary oncologist will complete a brief survey regarding the patient?s course as well as a semi-structured interview. The primary aim is to determine the feasibility and potential adverse effects of interviewing primary caregivers/parents of children who died within 30 days of an oncologic diagnosis, 3-6 months post their death.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team: