Conference Materials

The following conference materials are available for download until August 31, 2025.

Handouts

Some speaker handouts have been shared and are available for download in advance (see below). Presentation handouts will only be provided electronically. 

A limited printed syllabus with program agenda, meeting information and notes paper will be provided at the meeting.

Thursday, July 17, 2025

The Power of Words: The Science, Theory and Practice of Communicating With Patients and Families

Communicating With Patients and Families During Serious Illness
Jennifer Mack, MD, MPH

What Are We Talking About When We Talk About Shared Decision-Making?
Doug Opel, MD, MPH

Do Words Matter? Humanizing Stigmatized Groups Through the Words We Use
Maya Ragavan, MD, MPH, MS

Interdependent Decision-Making: What It Means for Pediatrics
Emily A. Largent, JD, PhD, RN

Breakout Sessions

Friday, July 18, 2025

Attending to Stories: Pediatrics, Bioethics and Narrative

Poetry Broadsides: Patient Narratives Through Creativity
Sierra Nelson

Narrative Ethics: Diverse Meanings and Practices
Elizabeth Lanphier, PhD, MS, HEC-C

Narrative Ethics: The Moral Work of Stories
Martha Montello, PhD

Story Matters:  The Importance of Narrative in Clinical Care and Ethics
Micah Hester, PhD

Bearing Witness: Narratives for Promoting Change in Medicine – No handout
Rachel Pearson, MD, PhD

Making Space for Stories: Articulating the Common Threads That Connect Us
Maren E. Olson, MD, MPH, MEd

Cases That Haunt Us: Narrative in Clinical Ethics Consultation
Denise Dudzinski, PhD

Attending to the Silenced Voices
Arika Moore Patneaude, MSW, LICSW, APHSW-C

Rethinking the Bioethics Origin Story
Aaron Wightman, MD, MA

A Conversation With Sheri Fink – No handout
Sheri Fink, MD, PhD

Saturday, July 19, 2025

Attending to Stories: Pediatrics, Bioethics and Narrative

From Monologue to Dialogue to Broader Conversation: Learning Through Story Collections
Ana S. Iltis, PhD

Narratives and Counter-Narratives: Who Controls Our Storied Selves?
Keisha Ray, PhD

The Fragility of Narrative: Unpacking the Fallibility of Memory and Storytelling
Douglas Diekema, MD, MPH

Abstract Sessions – No handouts

Past and Future Stories: Narrative and Moral Imagination in Pediatrics
Luke Mosley, MD, MTS