What is DBS?
- Deep Brain Stimulation (DBS) uses a small medical device that manages and treats seizures at their source. We implant the device in your child’s brain to reduce seizures and improve their quality of life.
- DBS delivers controlled electrical stimulation directly to specific areas in your child’s brain. The device delivers stimulation to help control seizures.
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Is DBS right for my child?
- DBS is designed for patients whose seizures start on 1 side of the brain and then affect the entire brain (partial-onset seizures, with or without secondary generalization) and seizures that don’t respond to anti-seizure medicines.
- We may recommend DBS in addition to seizure medicines (called adjunctive treatment).
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What happens before surgery?
- Your child’s provider will order a series of tests referred to as a Phase 1 evaluation. These tests are useful in learning about your child’s brain and seizures.
- After Phase 1 testing is complete, your child’s provider will let you know if DBS is a good treatment option for your child.
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How is this device implanted?
- We implant the DBS device and wires in an operating room in a 2-step process. We will give your child medicine (anesthesia), so they are fully asleep during the surgery.
- We place the DBS device under your child’s skin in the upper chest or abdomen. You cannot see the device after it is implanted.
- The neurosurgeon then makes a small hole in your child’s skull. We place small electrodes through this hole into the target area in the brain. We pass a tiny wire under the neck skin and scalp, then connect the DBS device to the brain electrodes.
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What happens after surgery?
Your child will stay in the hospital for up to 2 days and then return home.
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Programming Phase:
- A few weeks after surgery, a doctor who specializes in epilepsy (epileptologist) will turn the device on and adjust the stimulation settings.
- We program the device with a small computer tablet.
- It will take several clinic visits to program the device settings and find the right setting for your child.
- Your child’s provider will monitor how your child is doing very closely.
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How do I use the patient programmer?
The patient programmer is a device like a smartphone. With help from your child’s provider, this programmer will allow you to:
- Turn the device on and off
- Track seizures
- Adjust stimulation at home
- Check the device’s battery
- Turn it off for MRIs (magnetic resonance imaging)
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What are potential side effects?
Your child may:
- Feel numb or tingling in their head
- Feel dizzy
- Have mood changes
- Have trouble sleeping
- Have memory problems
- Have an increase in seizures
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Are there safety issues?
This implanted device affects the ability to safely have an MRI. If your child needs an MRI, a provider needs to program the DBS device into a protective mode. Please call your child’s epilepsy provider before your child gets an MRI.
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Where can I get more information?
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