Carrie L Heike, MD, MS

Carrie L Heike, MD, MS

Craniofacial Center

On staff since July 2006

Academic Title: Associate Professor

Research Title: Interim Co-Director, Center for Clinical and Translational Research

Research Center: Center for Clinical and Translational Research

  • Biography

    Carrie L. Heike, MD, MS, is an attending physician at Seattle Children's Hospital and associate professor in the Department of Pediatrics at the University of Washington School of Medicine. She completed her clinical fellowship in the Craniofacial Center at Seattle Children's Hospital in 2006. She has a passion for providing clinical care to children who are followed in the Craniofacial Center. Her research focuses on the epidemiology of craniofacial conditions, clinical outcomes, and quality improvement.

    • Related Pages

    • Heike Lab

      The Heike Lab conducts innovative research on questions related to craniofacial microsomia, 22q11.2 deletion syndrome and other craniofacial conditions.

  • Patient Testimonials

  • Awards and Honors

    Award Name Award Description Awarded By Award Date
    Elected to the Society for Pediatric Research 2010
    1st Place Journal Award, American Society of Plastic Surgical Nurses 2010
    Young Investigator Award, Childrens Hospital and Regional Medical Center 2006 - 2008
    Young Investigator Research Grant, American Academy of Pediatrics, Section on Genetics and Birth Defects 2004 - 2005
    Frederic C. Moll Prize in Pediatrics 2000
    Scott Greenwood Memorial Scholarship 1998
    University of Washington Womens Varsity Crew Scholarship Award 1994 - 1996
  • Publications

    Other Publications

    • Luquetti DV, Speltz ML, Wallace ER, Siebold B, Collett BR, Drake AF, Johns AL, Kapp-Simon KA, Kinter SL, Leroux BG, Magee L, Norton S, Sie K, Heike CL
      Methods and Challenges in a Cohort Study of Infants and Toddlers With Craniofacial Microsomia: The Clock Study.
      30621445 The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2019 Aug. : 56(7)877-889
    • Rosenberg J, Albert M, Aspinall C, Bautista S, Crilly Bellucci C, Edwards TC, Heike CL, Mecham SH, Patrick DL, Stueckle L, Kapp-Simon K
      Parent Observations of the Health Status of Infants With Clefts of the Lip: Results From Qualitative Interviews.
      30092661 The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2019 May : 56(5)646-657 PMCID:PMC6368886
    • Johns AL, Luquetti DV, Brajcich MR, Heike CL, Stock NM
      In Their Own Words: Caregiver and Patient Perspectives on Stressors, Resources, and Recommendations in Craniofacial Microsomia Care.
      30334912 The Journal of craniofacial surgery, 2018 Nov. : 29(8)2198-2205 PMCID:PMC6224304
    • Speltz ML, Kapp-Simon KA, Johns AL, Wallace ER, Collett BR, Magee L, Leroux BG, Luquetti DV, Heike CL
      Neurodevelopment of Infants with and without Craniofacial Microsomia.
      29685618 The Journal of pediatrics, 2018 July : 198226-233.e3 PMCID:PMC6019149
    • Luquetti DV, Brajcich MR, Stock NM, Heike CL, Johns AL
      Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives.
      29501301 International journal of pediatric otorhinolaryngology, 2018 April : 107164-175 PMCID:PMC5839339
    • Luquetti DV, Saltzman BS, Heike CL, Sie KC, Birgfeld CB, Evans KN, Leroux BG
      Phenotypic sub-grouping in microtia using a statistical and a clinical approach.
      25655944 American journal of medical genetics. Part A, 2015 April : 167(4)688-94
    • Wang KH, Heike CL, Clarkson MD, Mejino JL, Brinkley JF, Tse RW, Birgfeld CB, Fitzsimons DA, Cox TC
      Evaluation and integration of disparate classification systems for clefts of the lip.
      24860508 Frontiers in physiology, 2014 : 5163 PMCID:PMC4030199
    • Birgfeld CB, Saltzman BS, Hing AV, Heike CL, Khanna PC, Gruss JS, Hopper RA
      Making the diagnosis: metopic ridge versus metopic craniosynostosis.
      23348281 The Journal of craniofacial surgery, 2013 Jan. : 24(1)178-85
    • Birgfeld CB, Luquetti DV, Gougoutas AJ, Bartlett SP, Low DW, Sie KC, Evans KN, Heike CL
      A phenotypic assessment tool for craniofacial microsomia.
      21200224 Plastic and reconstructive surgery, 2011 Jan. : 127(1)313-20
    • Heike CL, Hing AV, Pagon RA, Bird TD, Dolan CR, Stephens K, Adam MP
      Craniofacial Microsomia Overview
      20301754 1993
  • Research Funding

    Grant Title Grantor Amount Award Date
    Patient-Centered Outcomes in Infants and Young Children with Cleft Lip and Palate NIH NIDCR $619,063 Subcontract 2015 - 2020
    Craniofacial Microsomia: Longitudinal Outcomes in Children pre-Kindergarten (CLOCK) NIH NIDCR $2,730,156 2012 - 2017


Board Certification(s)


Medical/Professional School

University of Washington School of Medicine, Seattle, WA


University of Washington School of Medicine, Seattle, WA


University of Washington School of Medicine, Seattle, WA

Clinical Interests

Partnering with patients, families, and healthcare professionals to provide interdisciplinary, longitudinal care to children and young adults.

Research Description

Dr. Heike is currently a co-prinipal investigator on a multi-center study to develop an instrument to assess caregiver's obeservations of health status in infants with clefts of the lip. She also works on multiple projects to investigate the etiology and clinical outcomes for individuals with craniofacial microsomia. She also has a particular interest in developing partnerships and using novel methods to enhance interdisciplinary team science.

Research Focus Area

Craniofacial, Epidemiology, Genetics and Developmental Biology, Healthcare outcomes