Research Programs
Health Services and Quality of Care Research Fellowship
The Center for Quality and Patient Safety helps to fund a two-year postdoctoral Health Services and Quality of Care Research Fellowship. With close mentorship, fellows learn state-of-the art health services and quality improvement research methodologies. For more information, see Health Services and Quality of Care Research Fellowship.
Patient Reported Outcomes (PRO) Program
To facilitate assessment of our clinical effectiveness, the Patient Reported Outcomes (PRO) program measures the outcomes of care provided to children admitted to the Medical, Surgical, Rehabilitation and Psychiatry and Behavioral Medicine units at Seattle Children's. We do this by measuring health-related quality of life (QOL).
We are a facet of Seattle Children's Center for Quality and Patient Safety. Our data-banking study is approved by the institutional review board (IRB). Our data consist of baseline, admission and follow-up QOL scores.
To measure patients’ health-related QOL, we administer the Pediatric Quality of Life Inventory (PedsQL) or the Functional Status 2-Revised (FS2R) survey to caregivers and patients who consent or assent to participate. We survey patient families who speak Chinese, English, Russian, Spanish or Vietnamese.
Parents and patients are asked to assess function during the month before hospitalization, during admission and then two to six weeks after discharge.
The PedsQL measures a child's physical, emotional, social and school/cognitive functioning. See the PedsQL Measurement Model for the Pediatric Quality of Life Inventory for more information.
For children who are atypically developing or who are moderately or severely disabled, we use the Functional Status II-Revised (FSIIR). It focuses less on physical functioning than the PedsQL survey. For a description of this tool, see Functional Status II(R): A Measure of Child Health Status.
Our team is composed of two clinical research coordinators and a research manager, overseen by the study’s primary investigator, Dr. Arti Desai.