WebMAP

User Provided Information

If you are using the Application as part of your participation in a research study, you will be asked to enter the unique Study ID provided to you by Children’s to login. All users will be prompted to enter information such as: (a) profile information which may include a profile name (your name or a pseudonym) and self-reported symptom information and goals that you enter into the Application; and (b) your responses to quizzes contained in the Application.

We do not collect, use, or disclose any information that would allow an End User to be personally identified through reasonable means. The Application may automatically collect certain data about the device that you use to access the Application (your “Device”) that cannot be used to identify you, including, but not limited to, mobile device type (i.e., iOS or Android) (“Device Data”).

Although you may enter some data into the Application, such as a screen name, such information will only be stored locally on your Device and will not be accessible by Seattle Children’s or hosted by us on any servers.

Study Participant Users, Collection of Usage Data

If you are accessing the Application as part of your participation in a research study (a “Study”), we may collect and disclose Device Data and information about the way you use the Application such as the features you access, including, but not limited to, video or audio files, lessons, assignments, and modules, the number of times you do so, the time of day you access each, and the duration of your use (“Usage Data”). Any such data will not contain your name or any other information identifiable to a particular individual. These data are collected by our third-party service provider 2morrow, Inc. and used by Seattle Children’s to further Study research and help Seattle Children’s better understand your experience using the Application and how the Application can be improved. These data will not be identifiable to a particular individual because they contain only an anonymous Study identification number.

If you are accessing the Application as part of your participation in a Study, you will be presented with a Study Informed Consent Form(s) that provides additional information about the Study and how information about you may be used and collected.

Study Participant Users Under 13 Years Old

Our Application may collect Device Data and Usage Data from Study participant children under 13 years of age. Parents/guardians of Study participants under 13 years old will be presented with the Study Consent Form(s) that provides additional information about use and collection of data from Study participants. If we learn we have collected or received personal data from a child under 13 without parental consent, we will delete that information. Parents have the right to review their child’s personal data, to have their child’s personal data deleted, and to refuse further collection, use, and/or disclosure of their child’s personal data by notifying us. If you would like to exercise any of these rights, or you believe we may have collected information from a child under 13 without parental consent, please contact us at ppsi@seattlechildrens.org.

Seattle Children's wants you to understand when and with whom it may share data collected by the Application. Seattle Children’s will not sell or rent information collected by the Application to others. Seattle Children's does not share information collected by the Application with others except as indicated below.

Service Providers

Third-party service providers who perform services on behalf of Seattle Children's may access Usage Data from the Application to allow better service to you and other users.

Other Situations

Seattle Children's may share information in response to a subpoena or similar investigative demand, a court order, or a request for cooperation from law enforcement or any government agency; to establish or exercise its legal rights, including, but not limited to, efforts to investigate, prevent, or take other action regarding illegal activity, suspected fraud, or other wrongdoing; to protect and defend the rights, property, or safety of Seattle Children's, its patients, employees, or others; to enforce the Application terms and conditions or other agreements and policies; or as otherwise required by law. In such cases, Seattle Children's may raise or waive any legal objection or right available to it.

If you install and use the Application information will be collected as described above. You can easily stop all collection of information by the Application by discontinuing use of the Application or uninstalling the Application. You may use the standard uninstall processes as may be available as part of your mobile device or via the mobile application marketplace or network.

We may occasionally make additions, updates, or other changes to this Privacy Policy. We will post any updated version(s) of this Privacy Policy on the Application and they will be effective upon posting. By continuing to use the Application you agree to any updated version(s) of this Privacy Policy.

By downloading and using the Application, you are consenting to our collecting, storing, deleting, using, combining and disclosing information about you as set forth in this Privacy Policy now and as amended by us.

If you have any questions, concerns, complaints or suggestions regarding our Privacy Policy, you may contact us at via email at PPSI@seattlechildrens.org or by telephone by calling us at 1-206-884-1845, or via email at privacy.questions@seattlechildrens.org for information about HIPAA rights, to exercise any of your privacy rights, or to offer concerns, complaints or suggestions.