Palliative Care Program

Northwest Pediatric Palliative Care Coalition (NWPPCC)

What is NWPPCC?

NWPPCC logo.pngPediatric Palliative Care teams at Seattle Children’s Hospital and OHSU Doernbecher Children’s Hospital, had an idea to join with colleagues in the northwest corner of our country to form a pediatric palliative care coalition. In collaboration with the Washington State Hospice and Palliative Care Organization and Oregon Hospice and Palliative Care Association, the Northwest Pediatric Palliative Care Coalition (NWPPCC) for the states of Alaska, Idaho, Montana, Oregon, and Washington, was launched in the fall of 2021.

A survey of key stakeholders in the five-state region brought forth information and the needs of a diverse group of people committed to the care of seriously ill children. It became clear that those surveyed had vastly different access to support for families. Our coalition launched in October 2021 to begin to address these needs.

Vision

The Northwest Pediatric Palliative Care Coalition (NWPPCC) has a vision that all children and families in the Pacific Northwest region facing serious illness will have access to comprehensive palliative care support through the duration of serious illness both in the hospital and at home in the community with the goal to prevent, anticipate and mitigate suffering.

Mission

NWPPCC’s mission is to empower our interprofessional workforce to advocate for every child and family to have access to the support necessary to live as well as possible with serious illness. We hope to achieve our mission through:

  • Supporting one another in providing clinical care in hospitals and in the community
  • Collaborating with our Pacific Northwest community to advance education and research
  • Engaging in advocacy and providing leadership and expertise in the region
  • Identifying gaps within hospice and palliative care in Alaska, Idaho, Montana, Oregon, and Washington state

Thank You to Our Partners

Newsletter Updates 2022:

How to Access Our Services

If you have any questions or would like to learn more, please email the coalition at NWPPCC@seattlechildrens.org.

Meet Our Leadership Team

  • Anne Anderson, RN, BSN, Seattle Washington
  • Jori Bogetz, MD, Seattle Washington
  • Rebecca Weicht Graves, DO, Palliative Care Physician with Providence in Anchorage, Alaska
  • Fiona Sampey, PA, Palliative Care Bozeman, Montana
  • Whitney Price, LCSW, CGCS, St Luke’s Pediatric Palliative Care program Boise, Idaho
  • Bob Macauley, MD Bridges Pediatric Palliative Care team Oregon
  • Monica Holland, ARNP OHSU
  • Megan Schomer, Parent Advisor, Idaho
  • April Endsley, Administrative Assistant

Family Resources

Support and bereavement

Provider Resources

Resources by State

Alaska resources

  • Hospice of Anchorage: A volunteer hospice agency that can provide social support to families with kids with serious illnesses. This includes emotional and spiritual support, info, education, companioning. They don’t have nursing or PCA staff.
    Phone: 907-561-5322
  • SALA Medical: Mobile integrated healthcare. Services include med administration, IV access and maintenance, prescription pickup, basic wound care, O2 delivery and maintenance, blood draws, non-emergent transport. Patients can ask the medical provider to contact SALA regarding eligibility and setting up services.
    Phone: 907-313-4898
    Email: mih@salamedics.com
  • TEARS Foundation: Child loss support groups, financial support for infant funeral expenses.
    Address: 5631 Silverado Way, F-102, Anchorage, AK 99518
    Phone: 907-529-4289
    Facebook: Alaska Chapter of the TEARS Foundation
    Email: alaskachapter@thetearsfoundation.org

Oregon resources

  • Oregon POLST (Physician Orders for Life-Sustaining Treatment) offers resources for end-of-life planning, if needed. Often, this type of planning is more relevant for adults making their own health care decisions.

Washington resources

Contact Us

Northwest Pediatric Palliative Care Coalition: NWPPCC@seattlechildrens.org