Research Events

June 2017

  • Sat 3
    Seattle Rare Disease Fair

    One in 10 people in the United States suffer from a rare disease. That is 30 million people in the U.S. Come learn about what makes a disease or disorder "rare," different rare medical conditions, what questions remain unanswered and what you can do about it. Come get inspired!

    Several inspiring people will share their experience working with or being a part of the rare disease community, and present ways that you can help. Speakers include James B. Hendricks, Ph.D, president, Seattle Children's Research Institute; Dean Suhr, president/co-founder, MLD Foundation; Erica Mossholder, executive director, CCA; Kendall Davis, senior manager, Strategic Alliances of Global Genes; Meagan Holt, director, Patient Branch of Project PC; Dawn Shaw, author/speaker; Kathy Devanny, advocacy relations and outreach specialist, Patient Worthy; and Carolina Sommer, founder/CEO/president, BORN A HERO.

    A number of organizations will be represented. Face painting and activities for kids and a photo booth will also be offered. Live music will be provided by Tyler Edwards, who has been featured on MTV and NASCAR. A professional DJ, Bryan Kretz, will also provide music during the event.

    Please bring a partial or complete care package if you can. These care packages will be given to children at Seattle Children's Hospital suffering from rare diseases. If you aren't able to bring a care package, please still come – we would love to see you there! A care package could include the following items: Stress balls, coloring books, crayons, markers, look-and-find books, glitter glue bottles, soft pillows, blankets, squeeze toys, Play-Doh, sensory (textured) balls, calming music, bubbles, pinwheels, noiseless party blowers, puzzles, books, stuffed animals and kaleidoscopes.

    Date: Saturday June 3, 11:00 a.m. to 4:00 p.m.
    Location: Westlake Park, 401 Pine St., Seattle, WA 98101
    Contact: For more information, visit http://www.rarediseaseseattle.org/.
  • Sun 11
    What’s Happening in Rheumatology Research: Novel Therapies for JIA, Lupus and Related Autoimmune Diseases

    You are invited to a special evening of discovery and discussion. Come hear the latest on novel therapies for juvenile idiopathic arthritis (JIA), lupus and other related autoimmune diseases. The evening will include a guided lab tour, informational and Q&A sessions and dinner. Presenters are Drs. Anne Stevens, MD, PhD and Kabita Nanda, MD. This event is free and open to the public.

    Date: Sunday June 11, 4:00 p.m. to 7:00 p.m.
    Location: Soundgarden Room, 11th Floor, Seattle Children’s Research Institute Jack R. MacDonald Building, 1900 Ninth Ave, Seattle, WA 98101
    Contact: RSVP by June 9 to Gretchen Stronks at 206-987-3257 or gretchen.stronks@seattechildrens.org.

July 2017

  • Fri 21
    13th Annual Pediatric Bioethics Conference – The Cutting Edge: Ethical Controversies in Pediatric Surgery

    Ethical issues involving children arise frequently in the surgical arena. While the core concepts of confidentiality, informed consent and respect for persons apply in the surgical realm, the application of these concepts in pediatric surgery can be challenging.

    Surgical innovation often occurs through trial and error, rather than within a clinical trial. This reality raises questions about whether some formal review process should be required prior to using an innovative technique. Solid organ transplantation raises questions about justice that rarely arise in other areas of medicine. Additionally, surgical practice involving children raises many other unique issues: Should parents be allowed to refuse a solid organ transplant? Are surgical complications different from medical errors? Should surgeons share their success rates prior to surgery? Should babies with trisomy 18 be eligible for cardiac surgery? Should innovative surgical techniques be subject to regulatory oversight?

    Join us for our 13th Annual Pediatric Bioethics Conference, where we will discuss ethical issues raised in the use of surgical interventions in children.

    Date: Friday July 21, 8:00 a.m. to 4:15 p.m.
    Location: Bell Harbor International Conference Center, 2211 Alaskan Way, Pier 66, Seattle, WA 98121
    Contact: For more information, visit http://www.seattlechildrens.org/research/initiatives/bioethics/events/pediatric-bioethics-conference/.
  • Sat 22
    13th Annual Pediatric Bioethics Conference – The Cutting Edge: Ethical Controversies in Pediatric Surgery

    Ethical issues involving children arise frequently in the surgical arena. While the core concepts of confidentiality, informed consent and respect for persons apply in the surgical realm, the application of these concepts in pediatric surgery can be challenging. Surgical innovation often occurs through trial and error, rather than within a clinical trial. This reality raises questions about whether some formal review process should be required prior to using an innovative technique. Solid organ transplantation raises questions about justice that rarely arise in other areas of medicine. Additionally, surgical practice involving children raises many other unique issues: Should parents be allowed to refuse a solid organ transplant? Are surgical complications different from medical errors? Should surgeons share their success rates prior to surgery? Should babies with trisomy 18 be eligible for cardiac surgery? Should innovative surgical techniques be subject to regulatory oversight? Join us for our 13th Annual Pediatric Bioethics Conference, where we will discuss ethical issues raised in the use of surgical interventions in children.

    Date: Saturday July 22, 7:45 a.m. to 1:00 p.m.
    Location: Bell Harbor International Conference Center, 2211 Alaskan Way, Pier 66, Seattle, WA 98121
    Contact: For more information, visit http://www.seattlechildrens.org/research/initiatives/bioethics/events/pediatric-bioethics-conference/.