There are many things to think about before deciding to take part in a research study. Here are answers to some commonly asked questions.
Taking part in research can look a lot like the regular medical care your child receives at a doctor’s office, clinic or hospital. Sometimes doctors also do research. It is important to talk with your doctor and the research team about the differences between the research and your child’s regular medical care.
In medical care, the doctor or your care team develops a plan of care tailored for your child.
When your child takes part in a study, the research team follows a set plan called a study protocol. The goal of research is to add to medical knowledge that might lead to improved treatments for children in the future. Your child might or might not benefit directly from being in a research study.
Learn more on the How to Participate in a Research Study page.
Safety is our main priority at Seattle Children’s. All studies follow strict regulations and guidelines:
Before your child joins a study, the research team will explain any risks of participating. The potential risks and potential benefits are listed on the consent and assent documents that you and your child will review with someone from the research team before joining a study.
Being in a study is voluntary. Your child can stop participating in a study at any time without it affecting your regular medical care at Seattle Children’s.
You might be asked to fill out a survey to share why you decided to stop taking part in the study. Filling out the survey is voluntary.
Yes. Your child will go to any scheduled medical appointments while in a study.
It’s important to tell your child’s doctor that your child is in a research study. Ask your doctor to talk with the researcher team to make sure there is no conflict with the medicines or treatments your child is currently taking.
Find out how Seattle Children's researchers are making a difference.