Orthopedics – Registries for Children with Congenital Upper Limb Differences
Condition or Therapy:
Hand or arm differences
What is the goal of this study?
The goal of these registries is to collect information about children born with hand or arm differences. We hope the information we gather will allow us to better understand the care of children with upper limb differences, the long-term outcomes of living with a limb difference, and the quality of life of children with limb differences.
Who can join the study?
You may take part in the registry if your child:
- Was born with an upper limb difference
- Is less than 18 years old
What will happen if my child takes part in this study?
If you chose to participate, researchers would collect medical information about your child’s diagnosis and treatment from your child’s medical chart. Additionally, you may be asked to complete a questionnaire about their health. This questionnaire will take approximately 10 minutes to complete and would be given to you at your regular orthopedic office visits.
Who can I contact for more information?
Email our study team.