Current Research Studies

Orthopedics – Registries for Children with Congenital Upper Limb Differences

Condition or Therapy:

Congenital upper limb differences.


Orthopedics and Sports Medicine

What is the goal of this study?

The goal of these registries is to collect information about children born with hand or arm differences. We hope the information we gather will allow us to better understand the care of children with upper limb differences, the long-term outcomes of living with a limb difference, and the quality of life of children with limb differences.  

Who can join the study?

You may take part in the registry if your child:

  • Was born with an upper limb difference
  • Is less than 18 years old

What will happen if my child takes part in this study?

If you chose to participate, researchers would collect medical information about your child’s diagnosis and treatment from your child’s medical chart. Additionally, you may be asked to complete a questionnaire about their health. This questionnaire will take approximately 10 minutes to complete and would be given to you at your regular orthopedic office visits.

Who can I contact for more information?

For more information on this research study, please contact our research team at

Study Location(s):

Seattle Children’s Orthopedics and Sport Medicine Clinic

Principal Investigator:

Dr. Suzanne Steinman