Orthopedics – Skeletal Dysplasia Clinical Registry
Condition or Therapy:
What is the goal of this study?
Researchers at Seattle Children's have created the skeletal dysplasia registry in hopes to gather information about individuals who have rare bone conditions or skeletal dysplasia. The registry is used to understand the natural history of patients with these types of conditions as well as analysis their outcome of care and quality of life.
Who can join the study?
Any patient that is being treated at the Seattle Children’s orthopedic clinic for spine and/or chest wall deformities that are diagnosed with early onset scoliosis.
What will happen if my child takes part in this study?
If you chose to participate, researchers would collect medical information about your child’s diagnosis and treatment from your child’s medical chart. Additionally, you may be asked to complete a questionnaire about their health. This questionnaire will take approximately 10 minutes to complete and would be given to you at your regular orthopedic office visits.
Who can I contact for more information?
Email our study team.