Orthopedics – Registry of Children With Acquired and Congenital Limb Deficiencies

What is the goal of this study?

The goal of this registry is to collect information about children with leg and foot deficiencies and to learn about how they live. We hope to use this information to provide better care for patients with leg and food deficiencies in the future.

Who can join the study?

You may take part in the registry if your child:

• Was born with a missing or absent leg or foot
• Is less than 21 years old

What will happen if my child takes part in this study?

If you decided to take part in this registry, you would allow us to collect information about your child’s lower limb deficiencies. This information will be included in our list of patients with limb differences.

You and your child may be asked to fill out a survey to tell us more about how your child lives his/her life. The surveys take about 10 minutes to complete.

Who can I contact for more information?

Email our study team.

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