Condition or Therapy:

Robin sequence, cleft palate or craniofacial microsomia

Category:

Craniofacial; Sleep

What is the goal of this study?

The goal of this study is to learn more about the sleep of infants with certain craniofacial conditions and find out who are more at risk for sleep and breathing problems. Researchers will collect information about infants with and without craniofacial conditions to compare their differences.

Who can join the study?

This study might be a good fit for your child if they:

  • Are between 0 to 6 months old with varying degrees of risk for sleep disorder
  • Have been diagnosed with Robin sequence, cleft palate or craniofacial microsomia, or Beckwith-Wiedemann syndrome
  • Have been previously evaluated at the Craniofacial Center at Seattle Children’s Hospital

Patients without craniofacial conditions are also welcome to take part in this study. This helps researchers compare differences with patients that have these conditions.

What will happen if my child takes part in this study?

If your child takes part in the study, they will come in for an overnight sleep study. We will collect information about your child’s facial measurements, height and weight, blood pressure and oxygen levels. We will take photos as well as a brief video recording of you and your child playing. Parents will be asked to complete questionnaires at the study visit, and also will be asked to wear an activity tracker for 1 week following the sleep study in order to monitor their sleep habits.

Who can I contact for more information?

Email the research coordinator.


Study Location(s):

Seattle Children's Hospital main campus

Principal Investigator:

Dr. Kelly Evans