Current Research Studies

A Multi-Center Pilot Study of the “Pediatric Cancer Care Experience” (PACE) Questionnaire


  • Condition: Other
  • Phase: II

What is the goal of the study?

This cross-sectional, multi-center pilot study aims to pilot a novel questionnaire, Pediatric Cancer Care Experience (PACE), to appraise care quality for children with advanced cancer. The questionnaire will be administered in a cohort of 120 parents/legal guardians of children with advanced cancer across 8 sites (Yale University coordinating site), with a target of 20-25 parents/legal guardians at SCH. The primary objective is to assess feasibility, acceptability, construct validity, and internal consistency of the PACE questionnaire. Funds for the project are being provided for 1) CRC time and 2) participant incentives.

Who can participate in the study?

Please contact the study team listed below to learn more.

Study Team: