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The Center for Pediatric Bioethics is committed to providing and promoting bioethics education in the form of lectures and discussions.
Rare is a brilliant documentary that invites viewers into the world of living with a rare genetic disease, introduces the doctors studying rare diseases and offers an intimate window into the realm of clinical trials. It is an honest portrayal of what it means to have a rare disease, the role of patient advocates, and successes and disappointments of clinical research. Rare was directed by Dr. Maren Grainger-Monsen and Nicole Newnham at the Stanford Center for Biomedical Ethics. Holly K. Tabor, PhD, assistant professor, Treuman Katz Center for Pediatric Bioethics, will be leading a panel to discuss this important issue along with Dr. Daniel Doherty, associate professor, Developmental Pediatrics; Dr. Bonnie W. Ramsey, director, Center for Clinical and Translational Research; and parents and advocates Dean Suhr, president, MLD Foundation; Teryn Suhr, executive director, MLD Foundation; and DeDe Van Quill, director, Foundation for Nager & Miller Syndromes.
Date: Monday Mar 10, 11:30 a.m. to 1 p.m.; film begins at 11:30 a.m. (lunch provided); panel discussion at 12:30 p.m., followed by Q&A Location: Wright Auditorium, Seattle Children’s, 4800 Sand Point Way NE, Seattle, WA 98105Contact: Please RSVP to email@example.com if you plan to attend, or contact firstname.lastname@example.org with any questions.
Sconyers/Godfrey Ethics Grand Rounds.
Megan A. Moreno, MD, MPH
Date: Thursday May 15, 8 to 9 a.m. Location: Wright Auditorium, Seattle Children's HospitalContact: For more information on Provider Grand Rounds, visit SeattleChildrens.org/healthcare-professionals/education/grand-rounds.
Seattle Children’s 10th Annual Pediatric Bioethics Conference will take place in Seattle on July 18 and 19, 2014.
Date: Friday Jul 18 Location: Bell Harbor International Conference Center, SeattleContact: Visit seattlechildrens.org/pediatric-bioethics-conference for more information.
Date: Saturday Jul 19 Location: Bell Harbor International Conference Center, SeattleContact: Visit seattlechildrens.org/pediatric-bioethics-conference for more information.
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Bioethics Film Series: Rare
Munchausen's by Internet: Clinician Monitoring of Parent Blogs in Cases of Suspected Abuse
10th Annual Pediatric Bioethics Conference: New Opportunities, New Challenges: Exploring the Ethical Boundaries of Pediatric Research
Seattle Children’s provides healthcare for the special needs of children regardless
of race, sex, creed, ethnicity or disability. Financial assistance for medically
necessary services is based on family income and hospital resources and is provided
to children under age 21 whose primary residence is in Washington, Alaska, Montana
Seattle Children’s Hospital, Research