Treuman Katz Center for Pediatric Bioethics

The first of its kind in the nation, the Treuman Katz Center improves the lives of children and their families by addressing ethical questions that arise in pediatric care and research.

Programs and Resources

The Treuman Katz Center serves as a national resource, helping physicians, researchers and policymakers advance their knowledge of bioethics and navigate complex moral dilemmas.

Center Highlights

Key Partnerships

Partnerships are an essential part of the Treuman Katz Center’s mission. Our researchers collaborate with colleagues across the nation and around the world in pursuit of answers to complex bioethics questions.

Our partners include the Center for Clinical and Translational Research at Seattle Children’s Research Institute and the Department of Bioethics and Humanities and the Institute of Translational Health Sciences at the University of Washington.

Bioethics Consultations

Our bioethicists provide practical guidance to families, providers, researchers and policymakers about patient care, public health and research issues. Our consultation service is available to colleagues throughout Seattle Children’s and the University of Washington, and we offer informal advice to people at outside institutions. Learn more about our services.

Publications

Gentry KR, Lepere K, Opel DJ. Informed consent in pediatric anesthesiology. Paediatric Anaesthesiology. 2017 Dec;27(12):1253-1260.

Rosenberg AR, Starks H, Unguru Y, Feudtner C, Diekema D. Truth telling in the setting of cultural differences and incurable pediatric illness: A Review. JAMA Pediatrics. 2017 Nov;171(11):1113-1119.

Johnston EE, Rosenberg AR, Kamal AH. Pediatric-specific end-of-life care quality measures: An unmet need of a vulnerable population. Journal of Oncology Practice. 2017 Oct;13(10):e874-e880.

Wilfond BS, Morales C, Taylor HA. Expanded acesss for nusinersen in patients with spinal muscular atropy: Negotiating limited data, limited alternative treatments, and limited hospital resources. American Journal of Bioethics. 2017 Oct;17(10):66-67.

Taylor HA, Morales C, Wilfond BS. A trial to test a novel approach to diabetes prevention. American Journal of Bioethics. 2017 Oct;17(10):74-75.

Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, Harris C, Knoppers BM, Koenig BA, Kohane IS, La Rosa S, Mattison J, O'Donnell CJ, Rai AK, Rehm HL, Rodriguez LL, Shelton R, Simoncelli T, Terry SF, Watson MS, Wilbanks J, Cook-Deegan R, McGuire AL. Creating a data resource: What will it take to build a medical information commons? Genome Medicine. 2017 Sep;9(1):84.

Carpenter D, Gonzalez D, Retsch-Bogart G, Sleath B, Wilfond B. Methodological and ethical issues in pediatric medication safety research. Pediatrics. 2017 Sep;140(3):e20170195.

Ormond KE, Mortlock DP, Scholes DT, Bombard Y, Brody LC, Faucett WA, Garrison NA, Hercher L, Isasi R, Middleton A, Musunuru K, Shriner D, Virani A, Young CE. Human germline genome editing. American Journal of Human Genetics. 2017 Aug 3;101(2):167-176. Review.

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Our Experts in the Media

  • Abby R. Rosenberg, MD, on promoting resilience in young cancer patients: Results from the PRISM trial11.17The ASCO Post
    Dr. Abby Rosenberg of Seattle Children’s Hospital discusses study findings on a skills-based intervention that helped teens and young adults with cancer manage stress to improve their quality of life and reduce distress.
  • Resilience intervention improves quality of life, lowers depression in young patients with cancer – 10.25.17 – Healio
    Adolescents and young adults with cancer who participated in a one-on-one targeted intervention reported improvements in resilience, cancer-related quality of life and stress management, according to a study scheduled for presentation at the Palliative and Supportive Care in Oncology Symposium. “The experience of cancer is stressful in all realms, but we tend to focus more on physical symptoms than the equally important social and emotional challenges,” said Dr. Abby Rosenberg, director of palliative care and resilience research at Seattle Children’s Research Institute and the lead author of the study.
  • Navajo Nation reconsiders ban on genetic research – 10.16.17 – Nature
    When the Navajo Nation opens its first oncology center next year in Tuba City, Arizona, clinicians there may be able to offer a service that has been banned on tribal lands for 15 years: analyzing the DNA of Navajo tribe members to guide treatments and study the genetic roots of disease. Still, some Navajo have lingering questions about whether the tribal government can protect the privacy of their genetic material and maintain control over its use. Such concerns helped to shape the current ban back in the early 2000s. “In the absence of a research code and lack of expertise at the time, they decided it was not a good time to move forward with genetic research until they were able to develop a research policy,” says Dr. Nanibaa’ Garrison, a member of the Navajo Nation who is a geneticist and bioethicist at Seattle Children’s Hospital.
  • American Cancer Society awards new research and training grants – 10.2.17 – Press Release
    The American Cancer Society has approved funding for 78 research and training grants totaling $39,836,250 in the second of two grant cycles for 2017. Dr. Abby Rosenberg of Seattle Children’s Hospital is a grant recipient. Rosenberg’s work will examine whether a brief, one-on-one intervention targeting stress-management/mindfulness, goal-setting, positive reframing, and meaning-making can address poorer psychosocial outcomes seen among adolescent and young adult cancer patients.
  • Docs should be aware of family beliefs regarding nondisclosure09.7.17Medical Xpress
    Physicians should be aware of societal codes of conduct that affect family beliefs and behaviors regarding information disclosure to pediatric patients, according to a study in JAMA Pediatrics. Dr. Abby Rosenberg from Seattle Children’s Hospital and colleagues discussed the balance of obligations to respect individual patient autonomy, professional truth telling, and tolerance of multicultural values for pediatric clinicians treating seriously ill children.
  • The tragic Charlie Gard case and what we can learn from it – 08.11.17 – The Seattle Times
    “Medical cases like Charlie Gard’s ignite public debate about what should happen when hospitals and courts disagree with families about what is best for a child…We should strive to remember, at a minimum, that reasonable people disagree about the best way to proceed in cases like these,” write op-ed authors Seema K. Shah and Drs. Abby Rosenberg and Doug S. Diekema. All three are faculty at the UW School of Medicine and at the Treuman Katz Center for Pediatric Bioethics at Seattle Children’s Research Institute.